Otwarty dostęp

Optimizing Opt-Out Consent for Record Linkage


Zacytuj

Anderman, C., A. Cheadle, S. Curry, P. Diehr, L. Shultz, and E. Wagner. 1995. “Selection Bias Related to Parental Consent in School-Based Survey Research.” Evaluation Review 19: 663-674. DOI: http://dx.doi.org/10.1177/0193841X9501900604.10.1177/0193841X9501900604Search in Google Scholar

Bates, N.A. 2005. “Development and Testing of Informed Consent Questions to Link Survey Data with Administrative Records.” In Proceedings of the American Statistical Association, May 12-15, 2005. 3786-3793, Miami Beach, FL. Available at: http:// www.amstat.org/committees/ethics/linksdir/Jsm2005Bates.pdf (accessed May 21, 2014).Search in Google Scholar

Calderwood, L. and C. Lessof. 2009. “Enhancing Longitudinal Surveys by Linking to Administrative Data.” In Methodology of Longitudinal Surveys, edited by P. Lynn, 55-72. Chichester: John Wiley & Sons.10.1002/9780470743874.ch4Search in Google Scholar

Couper, M.P. 2011. “The Future of Modes of Data Collection.” Public Opinion Quarterly 75: 889-908. DOI: http://dx.doi.org/10.1093/poq/nfr046.10.1093/poq/nfr046Search in Google Scholar

Dahlhamer, J.M. and C.S. Cox. 2007. “Respondent Consent to Link Survey Data with Administrative Records: Results from a Split-Ballot Field Test with the 2007 National Health Interview Survey.” In Proceedings of the Federal Committee on Statistical Methodology Research Conference, November 5-7, 2007, Arlington, VA. Available at: http://www.fcsm.gov/07papers/Dahlhamer.IV-B.pdf (accessed May 21, 2014).Search in Google Scholar

Eaton, D.K., R. Lowry, N.D. Brener, J.A. Grunbaum, and L. Kann. 2004. “Passive Versus Active Parental Permission in School-Based Survey Research.” Evaluation Review 28: 564-577. DOI: http://dx.doi.org/10.1177/0193841X04265651.10.1177/0193841X0426565115486161Search in Google Scholar

Ellikson, P.L. and J.A. Hawes. 1989. “Active vs. Passive Methods for Obtaining Parental Consent.” Evaluation Review 13: 45-55. DOI: http://dx.doi.org/10.1177/ 0193841X8901300104.10.1177/0193841X890130010411659371Search in Google Scholar

Fendrich, M. and T.P. Johnson. 2001. “Examining Prevalence Differences in Three National Surveys of Youth: Impact of Consent Procedures, Mode, and Editing Rules.” Journal of Drug Issues 31: 615-642.10.1177/002204260103100303Search in Google Scholar

Gray, M. 2010. “A Review of Data Linkage Procedures at NatCen”, Working Paper.Search in Google Scholar

London: National Centre for Social Research. Available at: http://www.natcen.ac.uk/media/205504/data-linkage-review.pdf (accessed May 21, 2014).Search in Google Scholar

Hunt, K.J., N. Schlomo, and J. Addington-Hall. 2013. “Participant Recruitment in Sensitive Surveys: A Comparative Trial of ‘Opt In’ Versus ‘Opt Out’ Approaches.” BMC Medical Research Methodology 13, DOI: http://dx.doi.org/10.1186/1471-2288-13-3.10.1186/1471-2288-13-3356691723311340Search in Google Scholar

Junghans, C., G. Feder, H. Hemingway, A. Timmis, and M. Jones. 2005. “Recruiting Patients to Medical Research: Double Blind Randomised Trial of ‘Opt-in’ versus ‘Opt-out’ Strategies.” British Medical Journal 331: 940. DOI: http://dx.doi.org/10.1136/bmj.38583.625613.AE.10.1136/bmj.38583.625613.AE126119116157604Search in Google Scholar

Pascale, J. 2011. “Requesting Consent to Link Survey Data to Administrative Records: Results from a Split-Ballot Experiment in the Survey of Health Insurance and Program Participation (SHIPP).” Study Series in Survey Methodology #2011-03, (U.S. Census Bureau. Washington DC). Available at: http://www.census.gov/srd/papers/pdf/ssm2011-03.pdf (accessed April 2013).Search in Google Scholar

Pascale, J. and T.S. Mayer. 2004. “Exploring Confidentiality Issues Related to Dependent Interviewing: Preliminary Findings.” Journal of Official Statistics 20: 357-377.Search in Google Scholar

Sakshaug, J., M.P. Couper, M.B. Ofstedal, and D. Weir. 2012. “Linking Survey and Administrative Records: Mechanisms of Consent.” Sociological Methods and Research 41: 535-569. DOI: http://dx.doi.org/10.1177/0049124112460381.10.1177/0049124112460381492863527375305Search in Google Scholar

Sakshaug, J. and F. Kreuter. 2012. “Assessing the Magnitude of Non-Consent Biases in Linked Survey and Administrative Data.” Survey Research Methods 6: 113-122.Search in Google Scholar

Sala, E., J. Burton, and G. Knies. 2012. “Correlates of Obtaining Informed Consent to Data Linkage: Respondents, Interview and Interviewer Characteristics.” Sociological Methods and Research 41: 414-439. DOI: http://dx.doi.org/10.1177/0049124112457330.10.1177/0049124112457330Search in Google Scholar

Sala, E., G. Knies, and J. Burton. 2013. “Propensity to Consent to Data Linkage: Experimental Evidence from the Innovation Panel on the Role of Three Survey Design Features.” Understanding Society Working Paper Series 2013-05. Colchester, England: University of Essex, Institute for Social and Economic Research. Available at: http:// www.iser.essex.ac.uk/publications/working-papers/understanding-society/2013-05 (accessed June 29, 2014).Search in Google Scholar

Scherpenzeel, A.C. and M. Das. 2011. “‘True’ Longitudinal and Probability-Based Internet Panels: Evidence from the Netherlands.” In Social and Behavioral Research and the Internet, edited by M. Das, P. Ester, and L. Kaczmirek, 77-104. New York: Taylor and Francis.10.4324/9780203844922-4Search in Google Scholar

Singer, E. 1978. “Informed Consent: Consequences for Response Rate and Response Quality in Social Surveys.” American Sociological Review 43: 144-162.10.2307/2094696Search in Google Scholar

Singer, E. 2003. “Exploring the Meaning of Consent: Participation in Research and Beliefs about Risks and Benefits.” Journal of Official Statistics 19: 273-285.Search in Google Scholar

Singer, E. and M.P. Couper. 2011. “Ethical Considerations in Internet Surveys.” In Social and Behavioral Research and the Internet, edited by M. Das, P. Ester, and L. Kaczmirek, 133-162. New York: Taylor and Francis.10.4324/9780203844922-6Search in Google Scholar

Singer, E., H.-J. Hippler, and N. Schwarz. 1992. “Confidentiality Assurances in Surveys: Reassurance or Threat?” International Journal of Public Opinion Research 4: 256-268. DOI: http://dx.doi.org/10.1093/ijpor/4.3.256.10.1093/ijpor/4.3.256Search in Google Scholar

Vellinga, A., M. Cormican, B. Hanahoe, K. Bennett, and A. Murphy. 2011. “Opt-Out as an Acceptable Method of Obtaining Consent in Medical Research: A Short Report.” BMC Medical Research Methodology 11: 40. DOI: http://dx.doi.org/10.1186/1471-2288-11-40. 10.1186/1471-2288-11-40307970221470399Search in Google Scholar

eISSN:
2001-7367
Język:
Angielski
Częstotliwość wydawania:
4 razy w roku
Dziedziny czasopisma:
Mathematics, Probability and Statistics