Accès libre

Knowledge, attitude and practice of health care providers toward prescribing factor replacement at federally funded haemophilia treatment centres in the United States

À propos de cet article

Citez

Valentino LA, Oza VM. Blood safety and the choice of anti-hemophilic factor concentrate. Pediatr Blood Cancer 2006; 47: 245–54. doi: 10.1002/pbc.20895.ValentinoLAOzaVMBlood safety and the choice of anti-hemophilic factor concentratePediatr Blood Cancer2006472455410.1002/pbc.20895Open DOISearch in Google Scholar

Zimmerman B, Valentino A. Haemophilia: in review. Pediatr Rev 2013; 34: 289–95. doi: 10.1542/pir.34-7-289.ZimmermanBValentinoAHaemophilia: in reviewPediatr Rev2013342899510.1542/pir.34-7-289Open DOISearch in Google Scholar

Srivastava A, Brewer AK, Mauser-Bunschoten EP, et al. Guidelines for the management of haemophilia. Haemophilia 2013; 19: e1–e47. doi: 10.1111/j.1365-2516.2012.02909.x.SrivastavaABrewerAKMauser-BunschotenEPGuidelines for the management of haemophiliaHaemophilia201319e1e4710.1111/j.1365-2516.2012.02909.xOpen DOISearch in Google Scholar

Berntorp E, Shapiro AD. Modern haemophilia care. Lancet 2012; 379: 1447–56. doi: 10.1016/S0140-6736(11)61139-2.BerntorpEShapiroADModern haemophilia careLancet201237914475610.1016/S0140-6736(11)61139-2Open DOISearch in Google Scholar

Center for Disease Control and Prevention. Haemophilia treatment centers. Available from https://www.cdc.gov/ncbddd/haemophilia/htc.html (accessed 1 May 2019).Center for Disease Control and PreventionHaemophilia treatment centersAvailable from https://www.cdc.gov/ncbddd/haemophilia/htc.html (accessed 1 May 2019).Search in Google Scholar

Partners in Bleeding Disorder Education. Available from www.partnersprn.org (accessed 1 May 2019).Partners in Bleeding Disorder EducationAvailable from www.partnersprn.org (accessed 1 May 2019).Search in Google Scholar

Health Resources & Services Administration. 340B Drug Pricing Program. Available from https://www.hrsa.gov/opa/index.html (accessed 9 September 2020).Health Resources & Services Administration340B Drug Pricing ProgramAvailable from https://www.hrsa.gov/opa/index.html (accessed 9 September 2020).Search in Google Scholar

O'Hara J, Hughes D, Camp C, Burke T, Carroll L, Diego DG. The cost of severe haemophilia in Europe: the CHESS study. Orphanet J Rare Dis 2017; 12(1): 106. doi: 10.1186/s13023-017-0660-y. PMID: 28569181; PMCID: PMC5452407.O'HaraJHughesDCampCBurkeTCarrollLDiegoDGThe cost of severe haemophilia in Europe: the CHESS studyOrphanet J Rare Dis201712110610.1186/s13023-017-0660-yPMID: 28569181; PMCID: PMC5452407545240728569181Open DOISearch in Google Scholar

Pedra G, Christoffersen P, Khair K, et al. The impact of factor infusion frequency on health-related quality of life in people with haemophilia. J Haem Pract 2020; 7(1): 102–109. doi: 10.17225/jhp00158.PedraGChristoffersenPKhairKThe impact of factor infusion frequency on health-related quality of life in people with haemophiliaJ Haem Pract20207110210910.17225/jhp00158Open DOISearch in Google Scholar

Santaella M, Bloomberg M, Anglade D. Home infusion teaching practices at federally funded haemophilia treatment centers in the United States of America. Res Pract Thromb Haemost 2017; 1(1): 81–89. doi:10.1002/rth2.12020.SantaellaMBloombergMAngladeDHome infusion teaching practices at federally funded haemophilia treatment centers in the United States of AmericaRes Pract Thromb Haemost201711818910.1002/rth2.12020605820130046677Open DOISearch in Google Scholar

Nossair F, Thornburg CD. The role of patient and healthcare professionals in the area of new haemophilia treatments in developed and developing countries. Ther Adv Hematol 2018; 9: 239–49. doi: 10.1177/2040620718784830.NossairFThornburgCDThe role of patient and healthcare professionals in the area of new haemophilia treatments in developed and developing countriesTher Adv Hematol201892394910.1177/2040620718784830611675730181844Open DOISearch in Google Scholar

Barry MJ, Edgman-Levitan S. Shared decision making – the pinnacle of patient-centered care. N Engl J Med 2012; 366: 780–1. doi: 10.1056/NEJMp1109283.BarryMJEdgman-LevitanSShared decision making – the pinnacle of patient-centered careN Engl J Med2012366780110.1056/NEJMp110928322375967Open DOISearch in Google Scholar

Elwyn G, Laitner S, Coulter A, Walker E, Watson P, Thomson R. Implementing shared decision making in the NHS. BMJ 2010; 341: c5146. doi: 10.1136/bmj.c5146.ElwynGLaitnerSCoulterAWalkerEWatsonPThomsonRImplementing shared decision making in the NHSBMJ2010341c514610.1136/bmj.c514620947577Open DOISearch in Google Scholar

Nurse Journal. What is a family nurse practitioner (FNP)? Available from https://nursejournal.org/family-practice/role-scope-of-practice-of-a-family-nurse-practitioner/ (accessed 27 November 2019).Nurse JournalWhat is a family nurse practitioner (FNP)?Available from https://nursejournal.org/family-practice/role-scope-of-practice-of-a-family-nurse-practitioner/ (accessed 27 November 2019).Search in Google Scholar

American Hospital Association. Fact Sheet: The 340B Drug Pricing Program. 2019. Available from https://www.aha.org/system/files/2019-01/fact-sheet-340b-0119.pdf (accessed 7 August 7 2020).American Hospital AssociationFact Sheet: The 340B Drug Pricing Program2019Available from https://www.aha.org/system/files/2019-01/fact-sheet-340b-0119.pdf (accessed 7 August 7 2020).Search in Google Scholar

Medicare Payment Advisory Commission. Overview of the 340B Drug Pricing Program. 2015. Available from http://www.medpac.gov/docs/default-source/reports/may-2015-report-to-the-congress-overview-of-the-340b-drug-pricing-program.pdf?sfvrsn=0 (accessed 7 August 7 2020).Medicare Payment Advisory CommissionOverview of the 340B Drug Pricing Program2015Available from http://www.medpac.gov/docs/default-source/reports/may-2015-report-to-the-congress-overview-of-the-340b-drug-pricing-program.pdf?sfvrsn=0 (accessed 7 August 7 2020).Search in Google Scholar

National Haemophilia Foundation (NHF). NHF Policy Statement Haemophilia Treatment Center Participation in the 340B Drug Discount Program. NHF, 2015. Available from https://www.haemophilia.org/sites/default/files/document/files/NHF-Position-Statement-Regarding-Haemophilia-Treatment-Center-Participation-in-the-340B-Drug-Discount-Program.pdf (accessed 7 August 7 2020).National Haemophilia Foundation (NHF)NHF Policy Statement Haemophilia Treatment Center Participation in the 340B Drug Discount ProgramNHF2015Available from https://www.haemophilia.org/sites/default/files/document/files/NHF-Position-Statement-Regarding-Haemophilia-Treatment-Center-Participation-in-the-340B-Drug-Discount-Program.pdf (accessed 7 August 7 2020).Search in Google Scholar

Polit DF, Beck CT. Nursing Research: Generating and Assessing Evidence for Nursing Practice. 9th edition. Philadelphia, PA: Lippincott, Williams and Wilkins; 2012.PolitDFBeckCTNursing Research: Generating and Assessing Evidence for Nursing Practice9th editionPhiladelphia, PALippincott, Williams and Wilkins2012Search in Google Scholar

eISSN:
2055-3390
Langue:
Anglais
Périodicité:
Volume Open
Sujets de la revue:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology