<abstract xmlns="http://www.w3.org/1999/xhtml"><sec><h3>Background</h3><p>Pain associated with bleeding disorders has been demonstrated to have an impact on patients’ and families’ quality of life. Both acute and chronic pain are common experiences and require attention by professionals working in haemophilia treatment centres (HTCs). The benefits of psychological pain management strategies such as cognitive behaviour therapy and self-management skills training are well documented; however, it is not well understood how Canadian social workers involved in haemophilia care perceive and provide pain management support to patients.</p></sec><sec><h3>Aims</h3><p>To explore the current understanding of pain management and practice as well as the education needs of members of Canadian Social Workers in Hemophilia Care (CSWHC).</p></sec><sec><h3>Method</h3><p>Twelve semi-structured qualitative interviews were conducted with members of CSWHC. Transcribed interviews were coded with NVivo software and thematically analysed.</p></sec><sec><h3>Results</h3><p>The four key themes reflecting the experiences of social workers are: 1) Limited comprehension of key issues related to pain; 2) Conditioning to push through pain; 3) Expanding pain knowledge to enhance practice; 4) How we practice social work and choose to step in.</p></sec><sec><h3>Conclusion</h3><p>The current practice of CSWHC members aligns with literature in three main areas including assessment, instrumental services, and counselling. Social workers support the development of pain education and practical resources for patients with haemophilia who experience pain. While formal education, advocacy, and policy development of pain assessment and management are recognised, these areas require further research and development.</p></sec></abstract>

BackgroundPain associated with bleeding disorders has been demonstrated to have an impact on patients’ and families’ quality of life. Both acute and chronic pain are common experiences and require attention by professionals working in haemophilia treatment centres (HTCs). The benefits of psychological pain management strategies such as cognitive behaviour therapy and self-management skills training are well documented; however, it is not well understood how Canadian social workers involved in haemophilia care perceive and provide pain management support to patients.AimsTo explore the current understanding of pain management and practice as well as the education needs of members of Canadian Social Workers in Hemophilia Care (CSWHC).MethodTwelve semi-structured qualitative interviews were conducted with members of CSWHC. Transcribed interviews were coded with NVivo software and thematically analysed.ResultsThe four key themes reflecting the experiences of social workers are: 1) Limited comprehension of key issues related to pain; 2) Conditioning to push through pain; 3) Expanding pain knowledge to enhance practice; 4) How we practice social work and choose to step in.ConclusionThe current practice of CSWHC members aligns with literature in three main areas including assessment, instrumental services, and counselling. Social workers support the development of pain education and practical resources for patients with haemophilia who experience pain. While formal education, advocacy, and policy development of pain assessment and management are recognised, these areas require further research and development.

Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care

Faculty of Social Work, University of Regina

The Journal of Haemophilia Practice

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

BackgroundPain associated with bleeding disorders has been demonstrated to have an impact on patients’ and families’ quality of life. Both acute and chronic...

CHARACTERISTIC	N

Gender
Male	2
Female	5
No response	5

Age Range
20–29	1
30–39	2
40–49	1
50–59	5
60–69	1
No response	2

Educational preparation
BSW	2
MSW	7
Additional degrees	4
No response	2

Years of practice
0–10	2
11–20	2
21–30	3
31–40	3
No response	2

Additional pain education
Yes	1
No	9
No response	2

Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care

Article Category: Professional Development

Publié en ligne: 17 oct. 2020

Pages: 110 - 120

DOI: https://doi.org/10.17225/jhp00163

Mots clés
psychosocial pain management, social workers, bleeding disorders, Canada

© 2020 Jennifer King et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Figure 1

Participant demographic information (N=12)

Pain management in bleeding disorders care: perspectives of Canadian Social Workers in Hemophilia Care

Article Category: Professional Development

Publié en ligne: 17 oct. 2020

Pages: 110 - 120

DOI: https://doi.org/10.17225/jhp00163

Mots cléspsychosocial pain management, social workers, bleeding disorders, Canada

© 2020 Jennifer King et al., published by Sciendo

This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.

Figure 1

Participant demographic information (N=12)

Mots clés
psychosocial pain management, social workers, bleeding disorders, Canada