Open Access

Genetics and Ethics: “Do not Go Alone”!

   | May 21, 2020

Cite

Allyse M, Minear MA, Berson E, Sridhar S, Rote M, Hung A, Chanrasekharan S. „Non-Invasive Prenatal Testing: a Review of International Implementation and Challenges.” Int J Womens Health 7 (2015):113-26.10.2147/IJWH.S67124 Search in Google Scholar

Burns CR. “Writing the History of Medical Ethics: a New Era for the New Millennium.” Med Humanit Rev. 14.1 (2000): 35-41. Search in Google Scholar

Cahill LS. “Stem Cells: a Bioethical Balancing Act.” America (NY)184.10 (2000): 14-19. Search in Google Scholar

Capron AM1, Mauron A, Elger BS, Boggio A, Ganguli-Mitra A, Biller-Andorno N. “Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings from an International Study.” Kennedy Inst Ethics J 19.2 (2009):101-24.10.1353/ken.0.0278 Search in Google Scholar

Carter BS, Roberts A, Martin R, Fincher RM. “A Longitudinal Ethics Curriculum for Medical Students and Generalist Residents at the Medical College of Georgia. Acad Med 74.1 Suppl (1999): S102-310.1097/00001888-199901000-00040 Search in Google Scholar

Dimmock DP, Bick DP. “Ethical Issues in DNA Sequencing in the Neonate.” Clin Perinatol 41.4 (2014): 993-1000.10.1016/j.clp.2014.08.016 Search in Google Scholar

Dudenhausen JW. “[Non-Invasive Genetic Prenatal Testing – an Ethical Discourse].” Z Geburtshilfe Neonatol 218.6. (2014): 238-41.10.1055/s-0034-1385921 Search in Google Scholar

Easton DF, Pooley KA, Dunning AM, et al. “Genome-wide Association Study Identifies Novel Breast cancer Susceptibility Loci.” Nature. 447.7148 (2007): 1087-93. Search in Google Scholar

Elger B, Biller-Adorno N, Mauron A and Capron AM., ed. Ethical Issues in Governing Biobanks – Global Perspectives. Aldershot: Ashgate, 2008. Search in Google Scholar

Capron AM1, Mauron A, Elger BS, Boggio A, Ganguli-Mitra A, Biller-Andorno N. “Ethical Norms and the International Governance of Genetic Databases and Biobanks: Findings from an International Study.” Kennedy Inst Ethics J 19.2 (2009): 101-24.10.1353/ken.0.0278 Search in Google Scholar

Ezzat H, Ross S, von Dadelszen PV, Morris T, Liston R, Magee LA; CPN Collaborative Group. “Ethics Review as a Component of Institutional Approval for a Multicentre Continuous Quality Improvement Project: the Investigator’s Perspective.” BMC Health Serv Res 10 (2010): 223.10.1186/1472-6963-10-223 Search in Google Scholar

Falus A, Oberfrank F: “A genetikai kutatás bioetikai, kutatásetikai kérdései.” In Szalai Csaba, ed. Genetika és Genomika, chapter 15. Budapest: Typotex, 2013. Search in Google Scholar

Ferencz A, Kosztolányi G, Falus A, Kellermayer M, Somfai B, Jelenits I, Hámori A. Biogenetika és etika [Biogenetics and Ethics] (Sapientia füzetek 4.). Budapest: Vigília Kiadó, 2005. Search in Google Scholar

Gershon ES, Alliey-Rodriguez N, Grennan K. “Ethical and Public Policy Challenges for Pharmacogenomics.” Dialogues Clin Neurosci 16.4 (2014): 567-74.10.31887/DCNS.2014.16.4/egershon Search in Google Scholar

Gitter DM. “The Challenges of Achieving Open-source Sharing of Biobank Data.” Biotechnol Law Rep. 29 (2010): 623-35.10.1089/blr.2010.9909 Search in Google Scholar

Hébert P, Saginur R. “Research Ethics Review: Do it Once and Do it Well.” CMAJ. 180.6 (2009): 597-98.10.1503/cmaj.090172 Search in Google Scholar

Knoppers BM, Harris JR, Budin-Ljøsne I, Dove ES. “A Human Rights Approach to an International Code of Conduct for Genomic and Clinical Data Sharing.” Hum Genet. 133.7 (2014): 895-903.10.1007/s00439-014-1432-6 Search in Google Scholar

Knoppers BM, Thorogood A, Chadwick R. “The Human Genome Organisation: Towards Next-generation Ethics.” Genome Med. 5.4 (2013): 38.10.1186/gm442 Search in Google Scholar

Kosugi S. [Ethical Issues in Genome-era]. Nihon Rinsho 74.6 (2016):1022-27. Review. Search in Google Scholar

Lantos JD. “Reconsidering Action: Day-to-day Ethics in the Work of Medicine.” HEC Forum 11.1 (1999): 52-57.10.1023/A:1008812620161 Search in Google Scholar

Lázaro-Muñoz G, Farrell MS, Crowley JJ, Filmyer DM, Shaughnessy RA, Josiassen RC, Sullivan PF. “Improved Ethical Guidance for the Return of Results from Psychiatric Genomics Research.” Mol Psychiatry 23.1 (2018): 15-23.10.1038/mp.2017.228 Search in Google Scholar

McCullough LB, Wilson NL, Rhymes JA, Teasdale TA. “Ethical Issues in Genetics and Aging: Diagnosis, Treatment, and Prevention in the Era of Molecular Medicine.” Generations 24.1 (2000): 72-78. Search in Google Scholar

Newson AJ, Schonstein L. “Genomic Testing in The Paediatric Population: Ethical Considerations in Light of Recent Policy Statements.” Mol Diagn Ther.20.5 (2016): 407-14.10.1007/s40291-016-0210-7 Search in Google Scholar

Ormond KE, Cho MK. “Translating Personalized Medicine Using New Genetic Technologies in Clinical Practice: the Ethical Issues.” Per Med. 11.2 (2014): 211-22.10.2217/pme.13.104 Search in Google Scholar

Richardson A, Ormond KE. “Ethical Considerations in Prenatal Testing: Genomic Testing and Medical Uncertainty.” Semin Fetal Neonatal Med. 23.1 (2018): 1-6.10.1016/j.siny.2017.10.001 Search in Google Scholar

Ruhnke GW, Wilson SR, Akamatsu T, Kinoue T, Takashima Y, Goldstein MK, Koenig BA, Hornberger JC, Raffin TA. “Ethical Decision Making and Patient Autonomy: a Comparison of Physicians and Patients in Japan and the United States.” Chest 118.4 (2000): 1172-82.10.1378/chest.118.4.1172 Search in Google Scholar

Ryan J, Virani A, Austin JC. “Ethical Issues Associated with Genetic Counseling in the Context of Adolescent Psychiatry.” Appl Transl Genom. 27.5: 23-29.10.1016/j.atg.2015.06.001 Search in Google Scholar

Solbakk JH, Holm S, Hofmann B (The Advisory Committee on Health Research: Genomics and World Health; World Health Organization). The Ethics of Research Biobanking. Springer,2009.10.1007/978-0-387-93872-1 Search in Google Scholar

Wood DK. “The Ethics of Evangelism in the Doctor-patient Relationship.” Todays Christ Dr. 30.1 (1999): 14-16. Search in Google Scholar

Zawati M, Cohen E, Parry D, Avard D, Syncox D. “Ethics Education for Clinician-researchers in Genetics: The Combined approach.” Appl Transl Genom. 16.4 (2014): 16-20.10.1016/j.atg.2014.12.001 Search in Google Scholar