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Education programs for people living with chronic pain: a scoping review


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Figure 1

The review process flowchart.
The review process flowchart.

Education programs—evaluation tools.

StudyPain disability Index: Roland Morris Disability QuestionnairePain Self-Efficacy QuestionnaireKinesiophobia Scale (Fear of Movement/injury)Chronic Pain Acceptance Questionnaire 8-ItemPain Catastrophizing Scale (pain negative orientation)Pain IntensityQuality of lifeMindfulnessDepression and anxietyHabitual action proneness questionnaireGlobal rating: PGIC patient global impression of changeChronic pain coping inventorySpatial summation procedures (SSP)FM impact questionnairePain vigilance and awareness questionnaireNeurophysiology of pain test, knowledge testIllness perception questionnaire for FMNumeric rating scale for painPatient pain questionnaire (focus on knowledge of medication)
1Dear et al.38Patient Health Questionnaire (Depression), Generalized Anxiety Disorder✓✓Wisconsin Brief Pain Questionnaire
2Morone et al.39Short-form McGill Pain Questionnaire✓, SF-36 Health Status Inventory
3Chiauzzi et al.40✓Oswestry Disability QuestionnaireBrief pain inventory✓Depression Anxiety Stress Scales
4Van Oosterwijck et al.41✓SF-36 Health Status Inventory
5Ittersum et al.42
6Cosio & Lin43✓Patient Health Questionnaire
7Morlion et al.44✓SF-36 Health Status Inventory✓Hospital Anxiety and Depression Scale (HADS)

Study characteristics.

StudyCountryStudy typeInterventions/study design/study aimStudy settingParticipantOutcomesStudy limitation
Dear et al.38AustraliaRandomize controlled trialOnline vs. workbook;Identical contents of information given to each group over 8 weeks, 2 psychologists with weekly contact to support their learning;(1) To provide information that helps participants to understand and deconstruct their symptoms and difficulties; (2) To teach a range of self-management skills to help participants manage their symptoms and difficulties; and (3) To reduce pain-related disability and improve emotional well-being by encouraging the practice and adoption of the skills taught within the program.Clinic & Community178 adults with chronic painBoth groups had similar positive result in level of disability, anxiety, and depression for immediate post treatment, 3 months and 12 months follow upsThe absence of a control group which limits the ability to control for general time effects, spontaneous remission, and the impacts of other treatments
Morone et al.39U.S.ARandomize controlled trialMeditation vs. education;8 weeks program, group education, one topic 1 week;To determine the impact of an 8-week mindfulness meditation program on disability, psychological function, and pain severity in community-dwelling older adults with chronic low back pain, and to test the education control program for feasibility.Community40 Adults ≥65 years with chronic low back painBoth groups improved on measures of disability, pain, and psychological function, both at program completion and 4 months follow-upSmall sample size, the sample was also predominantly white and well-educated
Chiauzzi et al.40U.S.ARandomize controlled trialWebsite vs. text based;Two groups received different information: website group with CBT and self-management as principle; text group had general information of back pain sent by regular email;To determine whether an interactive self-management website for people with chronic back pain would significantly improve emotional management, coping, self-efficacy to manage pain, pain levels, and physical functioning compared with standard text-based materials.Clinic & Community209 adults with chronic back painOnline interactive group with tailored contents showed effect changes in pain, depression, anxiety, and global rates of improvement compared with text groupControl group does not have same support as from the intervention group in the study; different recruitment ways brought participants with different baseline conditions
Van Oosterwijck et al.41BelgiumRandomize controlled trialPN vs. pacing self-management;2 weeks education, once a week, first session was one-to-one and face-to-face, second session was delivered through telephone contact to ensure participants understanding the information from session one;To examine whether intensive pain physiology education is effective in FM patients, and whether it is able to influence the impaired endogenous pain inhibition of these patients.Community30 patients with FMNeurophysiology group showed improvement in knowledge of PN, less worrying time, physical function, mental health, general health perception, and lower pain scores compared with self-management groupSmall sample, 4 males in the sample
Ittersum et al.42BelgiumRandomize controlled trialPN education vs. relaxation education;Both groups use a 15-pages booklet over 6 weeks, read by participants themselves;To determine whether the 12-week, “Pain Education School” program developed at a Midwestern VA medical center benefited veterans who suffer from chronic or persistent, noncancer pain.Clinic105 patients with FMNo differences between two groups and pre–post test, both groups showed no effective changes in pain cognitions, health status in patients with FMHigh dropout rates, small sample, not sure how much the participants understand the intervention/education materials
Cosio & Lin43USAQuasi experiment studyPain Education School Pre–Post test;Once a week, one-hour classes for 12 weeks, participants were not required to attend all sessions, they can choose the topics they like, delivered by multidisciplinary health professionals;To determine whether the 12-week, “Pain Education School” program developed at a Midwestern VA medical center benefited veterans who suffer from chronic or persistent, noncancer pain.Clinic206 veterans with chronic painStudy showed significant difference in pain intensity, readiness for Self-management, experience of pain, and depression by pre–post testLack of control group, education sessions are based on patient self-selection, so not all participants finished 12 weeks education
Morlion et al.44BelgiumQuasi experiment studyMultidisciplinary pain education program Pre-post test;4 sessions × 2 h over 2 weeks, delivered by multidisciplinary health professionals;A brief intervention to rapid improve core symptoms and complaints for people with chronic noncancer pain; to determine factors associated with improvement defined in terms of change in pain symptoms.Clinic63 adults with chronic painStudy showed improvement in pain symptoms and action-proneness but not in depression and kinesiophobiaLack of control group

Education programs —way of delivery.

StudyDurationFrequencyDelivered byWay of delivery
Face-to-Face one-to-oneFace-to-Face in groupOnlinebooklet
Dear et al.388 weeks7–10 days × a lesson, for 5 lessonsPsychologist × 2 weekly contact for learning support
Morone et al.398 weeks1 session × 90 min, once a weekHealth professional, not specific
Chiauzzi et al.404 weeksWebsite group: 20 min × twice a weekText group: on their own paceN/A
Van Oosterwijck et al.412 weeks1 session × 30 min, once a weekPhysiotherapist
Ittersum et al.426 weeksRead it several times with 1 or 2 days intermissionsN/A
Cosio & Lin4312 weeks1 session × 1 h, once a weekHealth professionals from over 20 disciplines
Morlion et al.442 weeks2 sessions × 2 h per weekA physiotherapist, A pain nurse, and a clinical psychologist

Education programs—contents.

StudyEducation contents
General informationCBT as principleSelf-managementPN
Dear et al.38
Morone et al.39
Chiauzzi et al.40
Van Oosterwijck et al.41
Ittersum et al.42
Cosio & Lin43
Morlion et al.44
eISSN:
2544-8994
Language:
English
Publication timeframe:
4 times per year
Journal Subjects:
Medicine, Assistive Professions, Nursing