This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Rodriguez-Merchan EC. Prevention of the musculoskeletal complications of hemophilia. Adv Prev Med 2012; 2012: 201271. doi: 10.1155/2012/201271.Rodriguez-MerchanECPrevention of the musculoskeletal complications of hemophiliaAdv Prev Med2012201220127110.1155/2012/201271Open DOISearch in Google Scholar
Van den Berg HM, Fisher K. Phenotypic-genotypic relationship. In: Lee CA, Berntorp EE, Hoots WK (ed.). Textbook of Haemophilia. 2nd ed. Chichester: Wiley-Blackwell, 2010: 33–7.Van den BergHMFisherKPhenotypic-genotypic relationshipIn:LeeCABerntorpEEHootsWK(ed.).Textbook of Haemophilia2nd ed.ChichesterWiley-Blackwell201033710.1002/9781444318555.ch4Search in Google Scholar
Berntorp E, Shapiro AD. Modern haemophilia care. Lancet 2012; 379: 1447–56. doi: 10.1016/S0140-6736(11)61139-2.BerntorpEShapiroADModern haemophilia careLancet201237914475610.1016/S0140-6736(11)61139-2Open DOISearch in Google Scholar
Bolton-Maggs PH, Pasi KJ. Haemophilias A and B. Lancet 2003; 361: 1801–9. doi: 10.1016/S0140-6736(03)13405-8.Bolton-MaggsPHPasiKJHaemophilias A and BLancet20033611801910.1016/S0140-6736(03)13405-8Open DOISearch in Google Scholar
Srivastava A, Santagostino E, Dougall A, et al. WFH guidelines for the management of haemophilia, 3rd edition. Haemophilia 2020; 00: 1–158. doi: 10.1111/hae.14046.SrivastavaASantagostinoEDougallAWFH guidelines for the management of haemophilia, 3rd editionHaemophilia202000115810.1111/hae.1404632744769Open DOISearch in Google Scholar
EURORDIS Rare Diseases Europe. About orphan drugs. Available from http://www.eurordis.org/aboutorphan-drugs. (accessed 28 September 2020).EURORDIS Rare Diseases EuropeAbout orphan drugsAvailable from http://www.eurordis.org/aboutorphan-drugs. (accessed 28 September 2020).Search in Google Scholar
Mannucci PM. Back to the future: a recent history of haemophilia treatment. Haemophilia 2008; 14(Suppl 3): 10–18. doi: 10.1111/j.1365-2516.2008.01708.x.MannucciPMBack to the future: a recent history of haemophilia treatmentHaemophilia200814Suppl 3101810.1111/j.1365-2516.2008.01708.x18510516Open DOISearch in Google Scholar
Franchini M. The modern treatment of haemophilia: a narrative review. Blood Transfus 2013; 11(2): 178–82. doi: 10.2450/2012.0166-11.FranchiniMThe modern treatment of haemophilia: a narrative reviewBlood Transfus20131121788210.2450/2012.0166-11362646822790275Open DOISearch in Google Scholar
Carcao MD. The diagnosis and management of congenital hemophilia. Semin Thromb Hemost 2012; 38(7): 727–34. doi: 10.1055/s-0032-1326786.CarcaoMDThe diagnosis and management of congenital hemophiliaSemin Thromb Hemost20123877273410.1055/s-0032-132678623011791Open DOISearch in Google Scholar
Keeling D, Tait C, Makris M. Guideline on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders. A United Kingdom Haemophilia Center Doctors’ Organisation (UKHCDO) guideline approved by the British Committee for Standards in Haematology. Haemophilia 2008; 14(4): 671–84. doi: 10.1111/j.1365-2516.2008.01695.x.KeelingDTaitCMakrisMGuideline on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders. A United Kingdom Haemophilia Center Doctors’ Organisation (UKHCDO) guideline approved by the British Committee for Standards in HaematologyHaemophilia20081446718410.1111/j.1365-2516.2008.01695.x18422612Open DOISearch in Google Scholar
Kodra Y, Cavazza M, Schieppati A, et al. The social burden and quality of life of patients with haemophilia in Italy. Blood Transfus 2014; 12(Suppl 3): s567–75. doi:10.2450/2014.0042-14s.KodraYCavazzaMSchieppatiAThe social burden and quality of life of patients with haemophilia in ItalyBlood Transfus201412Suppl 3s5677510.2450/2014.0042-14s404480424922297Open DOISearch in Google Scholar
Henrard S, Devleesschauwer B, Beutels P, et al. The health and economic burden of haemophilia in Belgium: a rare, expensive and challenging disease. Orphanet J Rare Dis 2014; 9: 39. doi: 10.1186/1750-1172-9-39.HenrardSDevleesschauwerBBeutelsPThe health and economic burden of haemophilia in Belgium: a rare, expensive and challenging diseaseOrphanet J Rare Dis201493910.1186/1750-1172-9-39399819324655371Open DOISearch in Google Scholar
Markova I, McDonald K, Forbes C. Integration of hemophilic boys into normal schools. Child Care Health Dev 1980; 6: 101–109. doi: 10.1111/j.1365-2214.1980.tb00802.x.MarkovaIMcDonaldKForbesCIntegration of hemophilic boys into normal schoolsChild Care Health Dev1980610110910.1111/j.1365-2214.1980.tb00802.x7357687Open DOISearch in Google Scholar
Woolf A, Rappaport L, Reardon P, Cibrorowski J, D’Angelo E, Besette J. School functioning and disease severity in boys with hemophilia. J Dev Behav Pediatr 1989; 10: 81–85. doi/10.1097/00004703-198904000-00004.WoolfARappaportLReardonPCibrorowskiJD’AngeloEBesetteJSchool functioning and disease severity in boys with hemophiliaJ Dev Behav Pediatr198910818510.1097/00004703-198904000-00004Open DOISearch in Google Scholar
Olch D. Effects of hemophilia upon intellectual growth and academic achievement. J Genet Psychol 1971; 119: 63–74. doi: 10.1080/00221325.1971.10532627.OlchDEffects of hemophilia upon intellectual growth and academic achievementJ Genet Psychol1971119637410.1080/00221325.1971.105326275118844Open DOISearch in Google Scholar
Colgrove RW, Huntzinger RM. Academic, behavioral, and social adaptation of boys with hemophilia/HIV disease. J Pediatr Psychol 1994; 19(4): 457–73. doi: 10.1093/jpepsy/19.4.457.ColgroveRWHuntzingerRMAcademic, behavioral, and social adaptation of boys with hemophilia/HIV diseaseJ Pediatr Psychol19941944577310.1093/jpepsy/19.4.4577931932Open DOISearch in Google Scholar
John MJ, Tanuja T, Mathew A, et al. Demographic profile and real world data of persons with hemophilia in a resource constrained setup. CHRISMED Journal of Health and Research 2018; 5: 214–20. doi: 10.4103/cjhr.cjhr_44_18.JohnMJTanujaTMathewADemographic profile and real world data of persons with hemophilia in a resource constrained setupCHRISMED Journal of Health and Research201852142010.4103/cjhr.cjhr_44_18Open DOISearch in Google Scholar
Dutta A, Kakati S, Kar S, Doley D. Joint and functional assessment following secondary and tertiary prophylaxis in people with hemophilia who were previously receiving episodic on demand factor replacement infrequently. Assam Journal of Internal Medicine 2020; 10(1): 27–31.DuttaAKakatiSKarSDoleyDJoint and functional assessment following secondary and tertiary prophylaxis in people with hemophilia who were previously receiving episodic on demand factor replacement infrequentlyAssam Journal of Internal Medicine20201012731Search in Google Scholar
Shapiro AD, Donfield SM, Lynn HS, et al. Defining the impact of hemophilia: the Academic Achievement in Children with Hemophilia Study. Pediatrics 2001; 108: e105.www. doi: 10.1542/peds.108.6.e105.ShapiroADDonfieldSMLynnHSDefining the impact of hemophilia: the Academic Achievement in Children with Hemophilia StudyPediatrics2001108e105www10.1542/peds.108.6.e10511731632Open DOISearch in Google Scholar
Drake JH, Soucie MJ, Cutter SC, Forsberg AD, Baker JR, Riske B. High school completion rates among men with hemophilia. Am J Prev Med 2010; 38(4S): S489–S494. doi: 10.1016/j.amepre.2009.12.024.DrakeJHSoucieMJCutterSCForsbergADBakerJRRiskeBHigh school completion rates among men with hemophiliaAm J Prev Med2010384SS489S49410.1016/j.amepre.2009.12.02420331948Open DOISearch in Google Scholar
Feldman BM, Pai M, Rivard GE, et al. Tailored prophylaxis in severe haemophilia A: interim results from the first 5 years of the Canadian Hemophilia Primary Prophylaxis Study. J Thromb Haemost 2006; 4: 1228–36. 10.1111/j.1538-7836.2006.01953.x.FeldmanBMPaiMRivardGETailored prophylaxis in severe haemophilia A: interim results from the first 5 years of the Canadian Hemophilia Primary Prophylaxis StudyJ Thromb Haemost2006412283610.1111/j.1538-7836.2006.01953.x16706965Open DOISearch in Google Scholar
Verma SP, Dutta TK, Nalini P, et al. A randomized study of very low-dose factor VIII prophylaxis in severe haemophilia – a success story from a resource limited country. Haemophilia 2016; 22: 342–8. doi: 10.1111/hae.12838.VermaSPDuttaTKNaliniPA randomized study of very low-dose factor VIII prophylaxis in severe haemophilia – a success story from a resource limited countryHaemophilia201622342810.1111/hae.1283826987935Open DOISearch in Google Scholar
Sidarthan N, Sudevan R, Narayana Pillai V, et al. Low dose prophylaxis for children with haemophilia in a resource-limited setting in south India – a clinical audit report. Haemophilia 2017; 23: e382–e384. doi: 10.1111/hae.13272.SidarthanNSudevanRNarayana PillaiVLow dose prophylaxis for children with haemophilia in a resource-limited setting in south India – a clinical audit reportHaemophilia201723e382e38410.1111/hae.1327228544055Open DOISearch in Google Scholar
Gouider E, Jouini L, Achour M, et al. Low dose prophylaxis in Tunisian children with haemophilia. Haemophilia 2017; 23: 77–81. doi: 10.1111/hae.13048.GouiderEJouiniLAchourMLow dose prophylaxis in Tunisian children with haemophiliaHaemophilia201723778110.1111/hae.1304827943510Open DOISearch in Google Scholar
Yao et al. The efficacy of recombinant FVIII low-dose prophylaxis in Chinese pediatric patients with severe hemophilia A: a retrospective analysis from the ReCARE study. Clin Appl Thromb Hemost 2017; 23: 851–8. doi: 10.1177/1076029616679507.YaoThe efficacy of recombinant FVIII low-dose prophylaxis in Chinese pediatric patients with severe hemophilia A: a retrospective analysis from the ReCARE studyClin Appl Thromb Hemost201723851810.1177/107602961667950727920236Open DOISearch in Google Scholar
Sachdeva A, Gunasekaran V, Ramya HN, et al. Consensus statement of the Indian Academy of Pediatrics in diagnosis and management of hemophilia. Indian Pediatrics 2018; 55: 582–90. doi: 10.1007/s13312-018-1302-8.SachdevaAGunasekaranVRamyaHNConsensus statement of the Indian Academy of Pediatrics in diagnosis and management of hemophiliaIndian Pediatrics2018555829010.1007/s13312-018-1302-8Open DOISearch in Google Scholar
World Federation of Hemophilia. Report on the Annual Global Survey 2011. December 2012. Available from (accessed 28 September 2020).World Federation of HemophiliaReport on the Annual Global Survey 2011December2012Available from (accessed 28 September 2020).Search in Google Scholar
World Federation of Hemophilia. Report on the Annual Global Survey 20th Anniversary, 2018. October 2019. Available from (accessed 28 September 2020).World Federation of HemophiliaReport on the Annual Global Survey 20th Anniversary, 2018October2019Available from (accessed 28 September 2020).Search in Google Scholar
Kar A, Phadnis S, Dharmarajan S, Nakade J. Epidemiology & social costs of haemophilia in India. Indian J Med Res 2014; 140(1): 19–31.KarAPhadnisSDharmarajanSNakadeJEpidemiology & social costs of haemophilia in IndiaIndian J Med Res201414011931Search in Google Scholar
, 