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Preston FE, Kitchen S, Jennings I, Woods TA, Makris M. SSC/ISTH classification of haemophilia A: can haemophilia center laboratories achieve the new criteria? J Thromb Haem 2004; 2; 271–4. doi: 10.1046/j.1538-7836.2003.00447.x.PrestonFEKitchenSJenningsIWoodsTAMakrisMSSC/ISTH classification of haemophilia A: can haemophilia center laboratories achieve the new criteria?J Thromb Haem20042271410.1046/j.1538-7836.2003.00447.x14995989Open DOISearch in Google Scholar
Mulder K, Llinas A. The target joint. Haemophilia 2004; 10 (Suppl 4): 152–6. doi: 10.1111/j.1365-2516.2004.00976.x.MulderKLlinasAThe target jointHaemophilia200410Suppl 4152610.1111/j.1365-2516.2004.00976.x15479389Open DOISearch in Google Scholar
Srivastava A, Santagostino E, Dougall A, et al. WFH Guidelines for the Management of Hemophilia, 3rd edition. Haemophilia 2020; 26 (Suppl 6): 1–158. doi: 10.1111/hae.14046.SrivastavaASantagostinoEDougallAWFH Guidelines for the Management of Hemophilia, 3rd editionHaemophilia202026Suppl 6115810.1111/hae.1404632744769Open DOISearch in Google Scholar
Ghosh K, Ghosh K. Management of haemophilia in developing countries: challenges and options. Indian J Blood Transfus 2016; 32(3); 347–55. doi: 10.1007/s12288-015-0562-x.GhoshKGhoshKManagement of haemophilia in developing countries: challenges and optionsIndian J Blood Transfus20163233475510.1007/s12288-015-0562-x493074927429529Open DOISearch in Google Scholar
Gupta N, Benbouzid A, Belhani M, et al. HAEMOcare: the first international epidemiological study measuring burden of hemophilia in developing countries. TH Open 2019; 3(2): e190–e199. doi: 10.1055/s-0039-1688414.GuptaNBenbouzidABelhaniMHAEMOcare: the first international epidemiological study measuring burden of hemophilia in developing countriesTH Open201932e190e19910.1055/s-0039-1688414659808331259302Open DOISearch in Google Scholar
Rambod M, Sharif F, Molaaem Z, Khair K. Pain experience in haemophilia patients: a hermeneutic phenomenological study. Int J Community Based Nurs Midwifery 2016; 4: 309–319.RambodMSharifFMolaaemZKhairKPain experience in haemophilia patients: a hermeneutic phenomenological studyInt J Community Based Nurs Midwifery20164309319Search in Google Scholar
Auerswald G, Dolan G, Duffy A, et al. Pain and pain management in haemophilia. Blood Coagul Fibrinolysis 2016; 27: 845–54. doi: 10.1097/MBC.0000000000000571.AuerswaldGDolanGDuffyAPain and pain management in haemophiliaBlood Coagul Fibrinolysis2016278455410.1097/MBC.0000000000000571508756627439216Open DOISearch in Google Scholar
Rodriguez-Merchan EC. Prevention of the musculoskeletal complications of haemophilia. Adv Prev Med 2012; 2012: 201271. doi: 10.1155/2012/201271.Rodriguez-MerchanECPrevention of the musculoskeletal complications of haemophiliaAdv Prev Med2012201220127110.1155/2012/201271338492722778972Open DOISearch in Google Scholar
Rambod M, Forsyth K, Sharif F, Khair K. Assessment and management of pain in children and adolescents with bleeding disorders: a cross-sectional study from three haemophilia centres. Haemophilia 2015; 22(1): 65–71. doi: 10.1111/hae.12765.RambodMForsythKSharifFKhairKAssessment and management of pain in children and adolescents with bleeding disorders: a cross-sectional study from three haemophilia centresHaemophilia2015221657110.1111/hae.1276526193989Open DOISearch in Google Scholar
Forsyth A, Witkop M, Lambing A, et al. Associations of quality of life, pain and self-reported arthritis with age, employment, bleed rate, utilization of haemophilia treatment center and health care provider services: results in adults with haemophilia in the HERO study. Patient Prefer Adherence 2015; 9: 1549–60. doi: 10.2147/PPA.S87659.ForsythAWitkopMLambingAAssociations of quality of life, pain and self-reported arthritis with age, employment, bleed rate, utilization of haemophilia treatment center and health care provider services: results in adults with haemophilia in the HERO studyPatient Prefer Adherence2015915496010.2147/PPA.S87659463141926604708Open DOISearch in Google Scholar
Arachchillage DR, Makris M. Choosing and using non-steroidal anti-inflammatory drugs in haemophilia. Haemophilia 2016; 22(2): 179–187. doi: 10.1111/hae.12805.ArachchillageDRMakrisMChoosing and using non-steroidal anti-inflammatory drugs in haemophiliaHaemophilia201622217918710.1111/hae.1280526538453Open DOISearch in Google Scholar
Lambing A, Kohn-Converse B, Hanagavadi S, Varma V. Use of acupuncture in the management of chronic haemophilia pain. Haemophilia 2012; 18(4): 613–7. doi: 10.1111/j.1365-2516.2012.02766.x.LambingAKohn-ConverseBHanagavadiSVarmaVUse of acupuncture in the management of chronic haemophilia painHaemophilia2012184613710.1111/j.1365-2516.2012.02766.x22404527Open DOISearch in Google Scholar
Kundu T, Shaikh A, Kutty A, et al. Homeopathic medicines substantially reduce the need for clotting factor concentrates in haemophilia patients: results of a blinded placebo controlled cross over trial. Homeopathy 2012; 101(1): 38–43. doi: 10.1016/j.homp.2011.10.004.KunduTShaikhAKuttyAHomeopathic medicines substantially reduce the need for clotting factor concentrates in haemophilia patients: results of a blinded placebo controlled cross over trialHomeopathy20121011384310.1016/j.homp.2011.10.00422226313Open DOISearch in Google Scholar
Rosted P, Jørgensen V. Acupuncture used in the management of pain due to arthropathy in a patient with haemophilia. Acupunct Med 2002; 20(4): 193–5. doi: 10.1136/aim.20.4.193.RostedPJørgensenVAcupuncture used in the management of pain due to arthropathy in a patient with haemophiliaAcupunct Med2002204193510.1136/aim.20.4.19312512795Open DOISearch in Google Scholar
Paredes AC, Costa P, Fernandes S, et al. Effectiveness of hypnosis for pain management and promotion of health-related quality of life among people with haemophilia: a randomised pilot trial. Scientific Reports 2019; 9(1): 13399. doi: 10.1038/s41598-019-49827-1.ParedesACCostaPFernandesSEffectiveness of hypnosis for pain management and promotion of health-related quality of life among people with haemophilia: a randomised pilot trialScientific Reports2019911339910.1038/s41598-019-49827-1674678731527700Open DOISearch in Google Scholar
Lambing A, Witkop M, Humphries J. Complementary and alternative therapy (CAM) in haemophilia pain: a review of published literature. J Haem Pract 2019; 6(1): 7–18. doi: 10.17225/jhp00122.LambingAWitkopMHumphriesJComplementary and alternative therapy (CAM) in haemophilia pain: a review of published literatureJ Haem Pract20196171810.17225/jhp00122Open DOISearch in Google Scholar
Oliveira KCP, Ricciardi JBDS, Grillo CM, et al. Acupuncture as a therapeutic resource for treatment of chronic pain in people with haemophilia. Haemophilia 2020; 00: 1–8. doi: 10.1111/hae.14151. Epub 30 Sept 2020.OliveiraKCPRicciardiJBDSGrilloCMAcupuncture as a therapeutic resource for treatment of chronic pain in people with haemophiliaHaemophilia2020001810.1111/hae.14151Epub 30 Sept 202032997869Open DOISearch in Google Scholar
Raja SN, Carr DB, Cohen M, et al. The revised International Association for the Study of Pain definition of pain: concepts, challenges and compromises. Pain 2020. doi: 10.1097/j.pain.0000000000001939.RajaSNCarrDBCohenMThe revised International Association for the Study of Pain definition of pain: concepts, challenges and compromisesPain202010.1097/j.pain.0000000000001939768071632694387Open DOISearch in Google Scholar
Grichnik KP, Ferrante FM. The difference between acute and chronic pain. Mt Sinai J Med 1991; 58(3): 217–20.GrichnikKPFerranteFMThe difference between acute and chronic painMt Sinai J Med199158321720Search in Google Scholar
Roussel NA. Gaining insight into the complexity of pain in patients with haemophilia: State-of-the-art review on pain processing. Haemophilia 2018; 24 (Suppl 6): 3–8. doi: 10.1111/hae.13509.RousselNAGaining insight into the complexity of pain in patients with haemophilia: State-of-the-art review on pain processingHaemophilia201824Suppl 63810.1111/hae.1350929878656Open DOISearch in Google Scholar
Timmer MA, Pisters MF, de Kleijn P, de Brie RA, Fischer K, Schutgens RE. Differentiating between signs of intra-articular joint bleeding and chronic arthropathy in haemophilia, a narrative review of the literature. Haemophilia 2015; 21(3); 289–96. doi: 10.1111/hae.12667.TimmerMAPistersMFde KleijnPde BrieRAFischerKSchutgensREDifferentiating between signs of intra-articular joint bleeding and chronic arthropathy in haemophilia, a narrative review of the literatureHaemophilia20152132899610.1111/hae.1266725854291Open DOISearch in Google Scholar
Tagliaferi A, Franchinin M, Rivolta GF, Farace S, Quintavalle G, Copploa A. Pain assessment and management in haemophilia: A survey among Italian patients and specialist physicians. Haemophilia 2018; 24(5): 766–773. doi: 10.1111/hae.13600.TagliaferiAFranchininMRivoltaGFFaraceSQuintavalleGCopploaAPain assessment and management in haemophilia: A survey among Italian patients and specialist physiciansHaemophilia201824576677310.1111/hae.1360030112811Open DOISearch in Google Scholar
Humphries TJ, Kessler CM. The challenge of pain evaluation in haemophilia: can pain evaluation and quantification be improved by using pain instruments from other clinical situations? Haemophilia 2013; 19: 181–7. doi: 10.1111/hae.12023.HumphriesTJKesslerCMThe challenge of pain evaluation in haemophilia: can pain evaluation and quantification be improved by using pain instruments from other clinical situations?Haemophilia201319181710.1111/hae.1202323039033Open DOISearch in Google Scholar
Euroqol. EQ-5D 3L. Available from https://euroqol.org/eq-5d-instruments/eq-5d-3l-about/ (accessed 7 October 2020).EuroqolEQ-5D 3LAvailable from https://euroqol.org/eq-5d-instruments/eq-5d-3l-about/ (accessed 7 October 2020).Search in Google Scholar
Whynes DK, McCahon RA, Ravenscroft A, et al. Responsiveness of the EQ-5D health-related quality-of-life instrument in assessing low back pain. Value in Health 2013; 16(1): 124–32. doi: 10.1016/j.val.2012.09.003.WhynesDKMcCahonRARavenscroftAResponsiveness of the EQ-5D health-related quality-of-life instrument in assessing low back painValue in Health20131611243210.1016/j.val.2012.09.003Open DOISearch in Google Scholar
Obradovic M, Lal A, Liedgens H. Validity and responsiveness of EuroQol-5 dimension (EQ-5D) versus Short Form-6 dimension (SF-6D) questionnaire in chronic pain. Health Qual Life Outcomes 2013; 11: 110. doi: 10.1186/1477-7525-11-110.ObradovicMLalALiedgensHValidity and responsiveness of EuroQol-5 dimension (EQ-5D) versus Short Form-6 dimension (SF-6D) questionnaire in chronic painHealth Qual Life Outcomes20131111010.1186/1477-7525-11-110372201623815777Open DOISearch in Google Scholar
Durham J, Steele JG, Breckons M, Story W, Vale L. DEEP Study: Does EQ-5D-5L measure impacts of persistent orofacial pain? J Oral Rehabil 2015; 42(9): 643–50. doi: 10.1111/joor.12296.DurhamJSteeleJGBreckonsMStoryWValeLDEEP Study: Does EQ-5D-5L measure impacts of persistent orofacial pain?J Oral Rehabil20154296435010.1111/joor.12296560965825818477Open DOISearch in Google Scholar
The King's Fund. Experience-based co-design toolkit. Available from https://www.kingsfund.org.uk/projects/ebcd (accessed 7 October 2020).The King's FundExperience-based co-design toolkitAvailable from https://www.kingsfund.org.uk/projects/ebcd (accessed 7 October 2020).Search in Google Scholar
Humphries TJ, Kessler CM. Managing chronic pain in adults with haemophilia: current status and call to action. Haemophilia 2015; 21(1): 41–51. doi: 10.1111/hae.12526.HumphriesTJKesslerCMManaging chronic pain in adults with haemophilia: current status and call to actionHaemophilia2015211415110.1111/hae.1252625274075Open DOISearch in Google Scholar
Pinto PR, Paredes AC, Almeida A. Pain prevalence, characteristics, and impact among people with hemophilia: findings from the first Portuguese survey and implications for pain management. Pain Med 2020;21(3): 458–471. doi: 10.1093/pm/pny309. PMID: 30812031.PintoPRParedesACAlmeidaAPain prevalence, characteristics, and impact among people with hemophilia: findings from the first Portuguese survey and implications for pain managementPain Med202021345847110.1093/pm/pny309PMID: 3081203130812031Open DOISearch in Google Scholar
Peltier SJ, Mazepa MA, Freese RL, et al. Opioid exposure in haemophilia patients is common and underreported. Haemophilia 2020; 26(2): 251–56. doi: 10.1111/hae.13950.PeltierSJMazepaMAFreeseRLOpioid exposure in haemophilia patients is common and underreportedHaemophilia20202622515610.1111/hae.1395032100423Open DOISearch in Google Scholar
Witkop M, Lambing A. Knowledge and attitudes survey in bleeding disorders providers regarding pain. Haemophilia 2015; 21(6): e465–e471. doi: 10.1111/hae.12749. PMID: 26496002.WitkopMLambingAKnowledge and attitudes survey in bleeding disorders providers regarding painHaemophilia2015216e465e47110.1111/hae.12749PMID: 2649600226496002Open DOISearch in Google Scholar
Rambod M, Sharif F, Molazem Z, Khair K. Pain self-management experiences in haemophilia patients: a qualitative study. J Haem Pract 2018; 5(1): 76–82. doi: 10.17225/jhp00107.RambodMSharifFMolazemZKhairKPain self-management experiences in haemophilia patients: a qualitative studyJ Haem Pract201851768210.17225/jhp00107Open DOISearch in Google Scholar
Strike K, Mulder K, Michael R. Exercise for haemophilia. Cochrane Database Syst Rev 2016; 12(12): CD011180. doi: 10.1002/14651858.CD011180.pub2. PMID: 27992070; PMCID: PMC6463808.StrikeKMulderKMichaelRExercise for haemophiliaCochrane Database Syst Rev20161212CD01118010.1002/14651858.CD011180.pub2PMID: 27992070; PMCID: PMC6463808646380827992070Open DOISearch in Google Scholar
Mazloum V, Rahnama N, Khayambashi K. Effects of therapeutic exercise and hydrotherapy on pain severity and knee range of motion in patients with hemophilia: a randomized controlled trial. Int J Prev Med 2014; 5(1): 83–8. PMID: 24554996; PMCID: PMC3915478.MazloumVRahnamaNKhayambashiKEffects of therapeutic exercise and hydrotherapy on pain severity and knee range of motion in patients with hemophilia: a randomized controlled trialInt J Prev Med201451838PMID: 24554996; PMCID: PMC3915478.Search in Google Scholar
Jadhav U, Mukherjee K, Thakur H. Usage of complementary and alternative medicine among severe haemophilia A patients in India. Journal of Evidence-Based Complementary & Alternative Medicine 2013; 18(3): 191–197. doi: 10.1177/2156587213484339.JadhavUMukherjeeKThakurHUsage of complementary and alternative medicine among severe haemophilia A patients in IndiaJournal of Evidence-Based Complementary & Alternative Medicine201318319119710.1177/2156587213484339Open DOISearch in Google Scholar
De la Corte-Rodriguez H, Rodriguez-Merchan EC. The role of physical medicine and rehabilitation in haemophiliac patients. Blood Coagul Fibrinolysis 2013; 24: 1–9. doi: 10.1097/MBC.0b013e32835a72f3.De la Corte-RodriguezHRodriguez-MerchanECThe role of physical medicine and rehabilitation in haemophiliac patientsBlood Coagul Fibrinolysis2013241910.1097/MBC.0b013e32835a72f323103725Open DOISearch in Google Scholar
Paredes AC, Costa P, Almeida A, Pinto PR. A new measure to assess pain in people with haemophilia: The Multidimensional Haemophilia Pain Questionnaire (MHPQ). PLoS One 2018; 13(11): e0207939. doi: 10.1371/journal.pone.0207939.ParedesACCostaPAlmeidaAPintoPRA new measure to assess pain in people with haemophilia: The Multidimensional Haemophilia Pain Questionnaire (MHPQ)PLoS One20181311e020793910.1371/journal.pone.0207939626160530485381Open DOISearch in Google Scholar
