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The Journal of Haemophilia Practice
Volume 6 (2019): Issue 2 (January 2019)
Open Access
Preparing for menarche: treatment and management of heavy periods in women with bleeding disorders
Michelle Lavin
Michelle Lavin
,
Rezan A Kadir
Rezan A Kadir
,
Sylvia von Mackensen
Sylvia von Mackensen
,
Debra Pollard
Debra Pollard
and
Anna Tollwé
Anna Tollwé
| Dec 13, 2019
The Journal of Haemophilia Practice
Volume 6 (2019): Issue 2 (January 2019)
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Article Category:
Women With Bleeding Disorders
Published Online:
Dec 13, 2019
Page range:
24 - 27
DOI:
https://doi.org/10.17225/jhp00141
Keywords
Women with bleeding disorders
,
menstrual bleeding
,
menorrhagia
,
awareness
,
communication
© 2019 Michelle Lavin, Rezan A Kadir, Sylvia von Mackensen, Debra Pollard, Anna Tollwé, published by Sciendo
This work is licensed under the Creative Commons Attribution-NonCommercial-NoDerivatives 3.0 License.
Improving diagnosis, care and treatment for women and girls who experience heavy menstrual bleeding is a multi-faceted challenge, involving the education of people with bleeding disorders and health professionals, early contact with the families of pre-pubertal girls, the breaking down of taboos around discussing menstruation, individualised treatment plans, and general awareness-raising© Shutterstock
Prevalence of menorrhagia in women with bleeding disorders [1]
DISORDER
PREVALENCE (%)
Von Willebrand disease
32-100
Platelet dysfunction
Glanzmann’s thrombasthenia
51
Bernard-Soulier syndrome
13-98
Haemophilia
10-57
Factor XI deficiency
59
Factor XIII deficiency
35-64
Rare factor deficiencies
35-70