Perceived confidence for injury self‑management increases for young men with mild haemophilia with the use of the mobile app HIRT?

1. World Federation of Hemophilia: Guidelines for the Management of Hemophilia. Available from: http://www1.wfh.org/publications/files/pdf-1472.pdf (accessed 11 April 2017).Search in Google Scholar

2. World Federation of Hemophilia: Annual Global Survey 2015. Available from: http://www1.wfh.org/publication/files/pdf-1669.pdf (accessed 11 April 2017).Search in Google Scholar

3. Blanchette VS, Key NS, Ljung LR, et al. Definitions in hemophilia: communication from the SSC of the ISTH. J Thromb Haemost 2014;12: 1935-9.10.1111/jth.1267225059285Open DOISearch in Google Scholar

4. Canadian Hemophilia Assessment and Resource Management Information System (CHARMS). Report date 15 April 2014.Search in Google Scholar

5. Peerlinck K, Jacquemin M. Mild haemophilia: a disease with many faces and many pitfalls. Haemophilia 2010; 16 (suppl. 5): 100-6.10.1111/j.1365-2516.2010.02306.x20590864Search in Google Scholar

6. Lipton RA. I need to pay more attention to mild haemophilia patients. Haemophilia 2011; 17(4): 704. doi: 10.1111/j.1365-2516.2010.02484.x.Search in Google Scholar

7. Kumar R, Stain AM, Hilliard P, Carcao M. Consequences of delayed therapy for sports-related bleeds in patients with mild-to-moderate haemophilia and type 3 von Willebrand’s disease not on prophylaxis. Haemophilia 2013; 19: e256-69.10.1111/hae.1216223647798Search in Google Scholar

8. Steele MJ, Laudenbach L. Delay in treatment and increased morbidity in mild hemophilia. Haemophilia 2004; 10 (suppl. 3): 86.Search in Google Scholar

9. Price VE, Hawes SA, Bouchard A, Vaughan A, Jarock C, Kuhle S. Unmeasured costs of haemophilia: the economic burden on families with children with haemophilia. Haemophilia 2015; 21, e294-9.10.1111/hae.1271525955276Search in Google Scholar

10. Venkateswaran L, Wilimas JA, Jones DJ, Nuss MD. Mild hemophilia in children: prevalence, complications, and treatment. J Pediatr Hematol Oncol 1998; 20: 32-5.10.1097/00043426-199801000-000059482410Search in Google Scholar

11. Ekholm C, Mattson E, Astermark J, Ljung R, Berntorp E. Mild haemophilia in Sweden. Haemophilia 2010; 16 (suppl. 4): 90.Search in Google Scholar

12. Schulman S. Mild Hemophilia. Treatment of Hemophilia series-41. World Federation of Hemophilia. 2006. http://www1.wfh.org/publication/files/pdf-1192.pdf. Accessed 1 Dec 2013.Search in Google Scholar

13. Jansen NWD, Roosendaal G, Lafeber FPJG. Understanding haemophilic arthropathy: an exploration of current open issues. Br J Haematol 2008; 143: 632-40.10.1111/j.1365-2141.2008.07386.x18950457Search in Google Scholar

14. Tagliaferri A, Di Perna C, Riccardi F, Pattacini C, Rivolta GF. The natural history of mild haemophilia: a 30-year single centre experience. Haemophilia 2012; 18: 166-74. doi: 10.1111/j.1365-2516.2011.02617.x.Search in Google Scholar

15. Franchini M, Favaloro E J, Lippi G. Mild Hemophilia A. J Thromb Haemost 2009; 8: 421-32. doi:10.1111/j.1538-7836.2009.03717.xSearch in Google Scholar

16. Chambost H, Gaboulaud V, Coatmelec B, et al. What factors influence the age at diagnosis of hemophilia? Results of the French hemophilia cohort. J Pediatr 2002; 141: 548-52.10.1067/mpd.2002.12811512378196Search in Google Scholar

17. Gamba G, Lodo F, Trinchero A, Montani N, Ghidelli N. Patterns of bleeding, age at first bleeding episode and at diagnosis in severe and mild/moderate haemophilia. Haemophilia 2010; 16 (suppl.4): 91.Search in Google Scholar

18. Nilson J, Schachter C, Mulder K, et al. A qualitative study identifying the knowledge, attitudes and behaviours of young men with mild haemophilia. Haemophilia 2012; 18: e120-5.10.1111/j.1365-2516.2011.02714.x22171673Open DOISearch in Google Scholar

19. Lindvall K, Colstrup L, Loogna K, Wollter IM, Gronhaug S. Knowledge of disease and adherence in adult patients with hemophilia. Haemophlia 2010; 16, 592-6.10.1111/j.1365-2516.2009.02189.x20136657Search in Google Scholar

20. Smartphone definition, https://en.oxforddictionaries.com/definition/smartphone, accessed 15 Jan 2017.Search in Google Scholar

21. Nilson J, Mulder K, Schachter C. A new self-assessment pathway tool for young men with mild hemophilia A and B who experience musculoskeletal bleeds. Haemophilia 2012; 18 (suppl. 3): 106.10.1111/j.1365-2516.2011.02714.xSearch in Google Scholar

22. Canadian Wireless Technology Association. CWTA, Facts and Figures, 2015. Available from: http://www.cwta.ca/factsfigures/ (accessed 17 October 2015).Search in Google Scholar

23. Future in Focus: Digital Canada. (2015). Available from: http:// www.cwta.ca/wp-content/uploads/2015/06/Digital-Futurein-Focus-2015-CANADA.pdf (accessed 28 April 2017).Search in Google Scholar

24. Dicianno BE, Parmanto B, Fairman AD, et al. Perspectives on the evolution of mobile (mHealth) technologies and application to rehabilitation. Phys Ther 2015; 95(3): 397-405.10.2522/ptj.20130534475763924925075Search in Google Scholar

25. Free C, Philips G, Galli L, et al. The effectiveness of mobilehealth technology-based health behaviour change or disease management interventions for health care consumers: A systematic review. PLoS Med 2013; 10(1): e1001362. doi:10.1371/journal.pmed.1001362.Search in Google Scholar

26. Cummings E, Hauser J, Cameron-Tucker H, et al. Enhancing self-efficacy for self-management in people with cystic fibrosis. Stud Health Technol Inform 2011; 169: 33-7.Search in Google Scholar

27. Steele Gray C, Miller D, Kuluski K, Cott C. Tying eHealth tools to patient needs: Exploring the use of eHealth for communitydwelling patients with complex chronic disease and disability. JMIR Res Protoc 2014; 3(4): e67. doi:10.2196/resprot.3500.Search in Google Scholar

28. Wayne N, Ritvo P. Smartphone-enabled health coach intervention for people with diabetes from a modest socioeconomic strata: Single arm longitudinal feasibility study. J Med Internet Res 2014; 16(6): e149. doi: 10.2196/jmir.3180.Search in Google Scholar

29. Boulos MNK, Wheeler S, Tavares C, Jones R. How smartphones are changing the face of mobile and participatory healthcare: an overview, with example from eCAALYX. Biomedical Engineering OnLine, 2011; 10: 24. doi: 10.1186/1475-925X-10-24.Search in Google Scholar

30. Lomotey RK, Mulder K, Nilson J, et al. Mobile selfmanagement guide for young men with mild hemophilia in cases of minor injuries. Netw Model Anal Health Inform Bioinforma 2014; 3: 64. doi: 10.1007/s13721-014-0064-z.Search in Google Scholar

31. Richard L, Morse JM. README FIRST for a User’s Guide to Qualitative Methods. 3rd edn. Los Angeles, London: Sage Publications Inc; 2013.Search in Google Scholar

32. Andrew S, Halcomb EJ. Mixed Methods Research for Nursing and Health Sciences. Oxford: Blackwell Publishing Ltd; 2009.10.1002/9781444316490Search in Google Scholar

33. Keller VF, White MK. Choices and changes: A new model for influencing patient behaviour. J Clin Outcomes Manag 1997; 4(6): 33-6.Search in Google Scholar

34. Apache CouchDB Futon Browse Database. Available from: http://couchdb.apache.org/ (accessed 15 December 2015).Search in Google Scholar

35. IBM; SPSS software. Available from: http://www-01.ibm.com/software/analytics/spss/downloads.html (accessed 3 March 2015).Search in Google Scholar

36. Dawson B, Trapp RG (eds.). Basic and Clinical Biostatistics. (Ch.5). 4th edn. McGraw-Hill Companies; 2004.Search in Google Scholar

37. Thorne S. Interpretive Description. Walnut Creek, CA: Left Coast Press; 2008.Search in Google Scholar

38. QRS International. NVivo for Windows. Available from: http://www.qsrinternational.com/products_nvivo.aspx (accessed 3 March 2015).Search in Google Scholar

39. Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006; 3(2): 77-101.10.1191/1478088706qp063oaOpen DOISearch in Google Scholar

40. Canadian Society for Exercise Physiology. Canadian Physical Activity Guidelines for Adults, 18-64 Years. Available from: http://www.csep.ca/CMFIles/Guidelines/CSEP_PAGuidelines_adults_en.pdf (accessed 28 April 2017).Search in Google Scholar

41. Nilson J. Are you HIRT? (Hemophilia Injury Recognition Tool): Perceptions from young men with mild hemophilia in Canada on the use of the mobile app for injury self-management (Master’s thesis, University of Saskatchewan). 2016. Available from: https://ecommons.usask.ca/handle/10388/ETD-2016-04-2508.Search in Google Scholar