Cite

1. White GC n, Rosendaal F, Aledort LM, et al. Definitions in hemophilia. Recommendation of the scientific subcommittee on factor VIII and factor IX of the scientific and standardization committee of the International Society on Thrombosis and Haemostasis. Thrombosis and Haemostasis 2001; 85(3): 560.10.1055/s-0037-1615621Search in Google Scholar

2. Manco-Johnson MJ, Riske B, Kasper CK. Advances in care of children with hemophilia. Semin Thromb Hemost 2003; 29: 585-94.10.1055/s-2004-815626Open DOISearch in Google Scholar

3. Manco-Johnson MJ. Update on treatment regimens: prophylaxis versus ondemand therapy. Semin Hematol 2003; 40: 3-9.10.1016/S0037-1963(03)80732-1Search in Google Scholar

4. Manco-Johnson M. Comparing prophylaxis with episodic treatment in haemophilia A: implications for clinical practice. Haemophilia 2007; 13 Suppl 2: 4-9.10.1111/j.1365-2516.2007.01499.x17685917Search in Google Scholar

5. Ljung R. Prophylactic therapy in haemophilia. Blood Rev 2009; 23(6): 267-74. doi: 10.1016/j.blre.2009.08.001. Search in Google Scholar

6. Gringeri A, Lundin B, von Mackensen S, et al. A randomized clinical trial of prophylaxis in children with hemophilia A (the ESPRIT Study). J Thromb Haemost 2011; 9(4): 700-10. doi: 10.1111/j.1538-7836.2011.04214.x.Search in Google Scholar

7. Nilsson IM, Berntorp E, Lofqvist T, Pettersson H. Twenty-five years’ experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232(1): 25-32.10.1111/j.1365-2796.1992.tb00546.x1640190Search in Google Scholar

8. Lindvall K, Von Mackensen S, Berntorp E. Quality of life in adult patients with haemophilia--a single centre experience from Sweden. Haemophilia 2012; 18(4): 527-31. doi: 10.1111/j.1365-2516.2012.02765.x.Search in Google Scholar

9. Larsson SA. Life expectancy of Swedish haemophiliacs, 1831-1980. Br J Haematol 1985; 59(4): 593-602.10.1111/j.1365-2141.1985.tb07353.x3885998Search in Google Scholar

10. Mauser-Bunschoten EP, Fransen Van De Putte DE, Schutgens RE. Co-morbidity in the ageing haemophilia patient: the down side of increased life expectancy. Haemophilia 2009; 15(4): 853-63. doi: 10.1111/j.1365-2516.2009.01987.x.Search in Google Scholar

11. Street A, Hill K, Sussex B, et al. Haemophilia and ageing. Haemophilia 2006; 12 Suppl 3: 8-12.10.1111/j.1365-2516.2006.01254.xOpen DOISearch in Google Scholar

12. Siboni SM, Mannucci PM, Gringeri A, et al. Health status and quality of life of elderly persons with severe hemophilia born before the advent of modern replacement therapy. J Thromb Haemost 2009; 7(5): 780-6. doi: 10.1111/j.1538-7836.2009.03318.x.Search in Google Scholar

13. Franchini M, Mannucci PM. Co-morbidities and quality of life in elderly persons with haemophilia. Br J Haematol 2010; 148(4): 522-33. doi: 10.1111/j.1365-2141.2009.08005.x.Search in Google Scholar

14. Lindvall K, Swedenborg N. UMAS Hemophilia Database. Stud Health Technol Inform. 2006; 122: 853.Search in Google Scholar

15. Ware JE, Jr., Sherbourne CD. The MOS 36-item short-form health survey (SF- 36). I. Conceptual framework and item selection. Med Care 1992; 30(6): 473-83.10.1097/00005650-199206000-00002Open DOISearch in Google Scholar

16. Sullivan M, Karlsson J, Ware JE J. The Swedish SF-36 Health Survey--I. Evaluation of data quality, scaling assumptions, reliability and construct validity across general populations in Sweden. Social Science & Medicine 1995; 41(10): 1349-58.10.1016/0277-9536(95)00125-QSearch in Google Scholar

17. Huskisson EC. Measurement of pain. Lancet. 1974; 2(7889): 1127-31. 10.1016/S0140-6736(74)90884-8Search in Google Scholar

18. Elmstålh S, Malmberg B, Annerstedt L. Caregiver’s burden of patients 3 years after stroke assessed by a novel caregiver burden scale. Arch PhysMed Rehabil 1996; 77(2): 177-82.10.1016/S0003-9993(96)90164-1Search in Google Scholar

19. Hilliard P, Funk S, Zourikian N, et al. Hemophilia joint health score reliability study. Haemophilia 2006; 12(5): 518-25.10.1111/j.1365-2516.2006.01312.x16919083Open DOISearch in Google Scholar

20. Data on Swedish unemployment rate. [cited 2013 13 February 2013]; Available from: www.scb.seSearch in Google Scholar

21. Schulz R, Beach SR. Caregiving as a risk factor for mortality; the Caregiver Health Effects Study. J Am Med Assoc 1999; 282: 2215-9.10.1001/jama.282.23.221510605972Search in Google Scholar

22. Andrén S, Elmstålh S. Family caregivers subjective experiences of satisfaction in dementia care: aspects of burden, subjective health and sense of coherence. Scand J Caring Sci 2005; 19: 157-68.10.1111/j.1471-6712.2005.00328.x15877641Open DOISearch in Google Scholar

23. Lindvall K, Colstrup L, Loogna K, et al. Knowledge of disease and adherence in adult patients with haemophilia. Haemophilia 2010; 16(4): 592-6. doi: 10.1111/j.1365-2516.2009.02189.x.Search in Google Scholar

eISSN:
2055-3390
Language:
English
Publication timeframe:
Volume Open
Journal Subjects:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology