Open Access

Joint assessment in haemophilia – current physiotherapist practice in the UK


Cite

1. Poonnoose PM, Manigandan C, Thomas R, et al. Functional Independence Score in Haemophilia: a new performanceSbased instrument to measure disability. Haemophilia 2005; 11: 598S602.10.1111/j.1365-2516.2005.01142.x16236109Search in Google Scholar

2. van Genderen FR, Fischer K, Heijnen L, et al. Pain and functional limitations in patients with severe haemophilia. Haemophilia 2006; 12: 147S53.10.1111/j.1365-2516.2006.01203.x16476089Open DOISearch in Google Scholar

3. Roosendaal G, Tekoppele JM, Vianen ME, et al. Articular cartilage is more susceptible to blood induced damage at young than at old age. J Rheumatol 2000; 27: 1740S4.Search in Google Scholar

4. MancoSJohnson MJ, Abshire TC, Shapiro AD, et al. Prophylaxis versus episodic treatment to prevent joint disease in boys with severe hemophilia. N Engl J Med 2007; 357: 535S44.10.1056/NEJMc07262318003967Search in Google Scholar

5. Liesner RJ, Khair K, Hann IM. The impact of prophyactic treatment on children with severe haemophilia. Br J Haematol 1996; 92: 973S8.10.1046/j.1365-2141.1996.420960.x8616096Search in Google Scholar

6. Srivastava A, Brewer AK, MauserSBunschoten EP, et al. Guidelines for the management of hemophilia. Haemophilia 2013; 19T1U: e1S47.10.1111/j.1365-2516.2012.02909.x22776238Open DOISearch in Google Scholar

7. Richards M, Williams M, Chalmers E, et al. A United Kingdom Haemophilia Centre Doctors' Organization guideline approved by the British Committee for Standards in Haematology: guideline on the use of prophylactic factor VIII concentrate in children and adults with severe haemophilia A. Br J Haematol 2010; 149: 498S507.10.1111/j.1365-2141.2010.08139.x20230411Search in Google Scholar

8. Feldman BM, Funk S, Bergstrom BSM, et al. Validation of a new pediatric joint scoring system from the International Hemophilia Prophylaxis Study Group: Validity of the Hemophilia Joint Health Score THJHSU. Arthritis Care & Research 2011; 63: 223S30.10.1002/acr.2035320862683Search in Google Scholar

9. Bladen M, Main E, Hubert N, et al. Factors affecting the Haemophilia Joint Health Score in children with severe haemophilia. Haemophilia 2013; 19: 626S31.10.1111/hae.1210823534671Open DOISearch in Google Scholar

10. Hilliard P, Funk S, Zourikian N, et al. Hemophilia joint health score reliability study. Haemophilia 2006; 12: 518S25.10.1111/j.1365-2516.2006.01312.x16919083Search in Google Scholar

11. Fischer K, de Kleijn P. Using the Haemophilia Joint Health Score for assessment of teenagers and young adults: exploring reliability and validity. Haemophilia 2013; 19: 944S50.10.1111/hae.1219723730725Open DOISearch in Google Scholar

12. Chen L, Sun J, Wu R, et al. Joint health status of Chinese hemophilia children: a pilot study using the Hemophilia Joint Health Assessment Scale THJHSU. Haemophilia 2008; 14 Suppl 2: 79.Search in Google Scholar

13. Den Uijl IE, Biesma D, Grobbee D, Fischer K. Outcome in moderate haemophilia. Blood Transfus 2012; 1S7.Search in Google Scholar

14. Den Uijl IE, de Schepper AM, Camerlinck M, et al. Magnetic resonance imaging in teenagers and young adults with limited haemophilic arthropathy: baseline results from a prospective study. Haemophilia 2011; 17: 926S30.10.1111/j.1365-2516.2011.02513.x21435115Open DOISearch in Google Scholar

15. Khawaji M, Astermark J, Berntorp E. Lifelong prophylaxis in a large cohort of adult patients with severe haemophilia: a beneficial effect on orthopaedic outcome and quality of life. Eur J Haematol 2012; 88: 329S35.10.1111/j.1600-0609.2012.01750.x22221195Open DOISearch in Google Scholar

16. Saulyte Trakymiene S, Ingerslev J, Rageliene L. Utility of the Haemophilia Joint Health Score in study of episodically treated boys with severe haemophilia A and B in Lithuania. Haemophilia 2010;16: 479S86.10.1111/j.1365-2516.2009.02178.x20070384Search in Google Scholar

17. van der Net J, Vos RC, Engelbert RH, et al. Physical fitness, functional ability and quality of life in children with severe haemophilia: a pilot study. Haemophilia. 2006;12: 494S9.10.1111/j.1365-2516.2006.01307.x16919079Search in Google Scholar

18. Groen WG, van der Net J, Helders PJ, Fischer K. Development and preliminary testing of a Paediatric Version of the Haemophilia Activities List TPedhalU. Haemophilia 2010; 16: 281S9.10.1111/j.1365-2516.2009.02136.x19906160Open DOISearch in Google Scholar

19. Groen W, Van Der Net J, Lacatusu AM, et al. Functional limitations in Romanian children with haemophilia; further testing of psychometric properties of the Paediatric Haemophilia Activities List. Haemophilia 2103; 19: e116S12510.1111/hae.1209023374095Search in Google Scholar

20. van Genderen FR, Van Meeteren NL, Van Der Bom JG et al. Functional consequences of haemophilia in adults: the development of the Haemophilia Activities List. Haemophilia 2004; 10: 565V71.10.1111/j.1365-2516.2004.01016.x15357785Search in Google Scholar

21. van Genderen FR, Westers P, Heijnen L, et al. Measuring patients’ perceptions on their functional abilities: validation of the Haemophilia Activities List. Haemophilia 2006; 12: 36V46.10.1111/j.1365-2516.2006.01186.x16409173Search in Google Scholar

22. von Mackensen S, Bullinger M. Development and testing of an instrument to assess the quality of life of children with haemophilia in Europe THaemoSQoLU. Haemophilia 2004; 10 Suppl 1: 17S25.10.1111/j.1355-0691.2004.00875.x14987245Search in Google Scholar

23. Pollak E, Mühlan H, von Mackensen S, et al. The HaemoSQoL Index: developing a short measure for healthSrelated quality of life assessment in children and adolescents with haemophilia. Haemophilia 2006; 12: 384S92.10.1111/j.1365-2516.2006.01292.x16834738Open DOISearch in Google Scholar

24. von Mackensen S, Czepa D, Herbsleb M, Hilberg T. Development and validation of a new questionnaire for the assessment of subjective physical performance in adult patients with haemophiliaSSthe HEPSTestSQ. Haemophilia 2010; 16: 170S8.10.1111/j.1365-2516.2009.02112.x19845778Search in Google Scholar

25. Haemophilia Alliance. A National Service Specification for Haemophilia and other Inherited Bleeding Disorders T2nd editionU. 2006. Available from http://www.ukhcdo.org/docs/HaemAllianceSNatSvsSpec2006.pdfSearch in Google Scholar

26. McLaughlin P, Chowdary P. Correlation of Haemophilia Activities List THALU and musculoskeletal physical assessment in a cohort of 95 severe hemophilia patients. 13th International Musculoskeletal Congress. Chicago, April 2013. Abstract B4.6Search in Google Scholar

27. Doward LC, McKenna SP, Defining PatientSReported Outcomes. Value in Health 2004; 7TS1U: S4SS8.10.1111/j.1524-4733.2004.7s102.x15367236Search in Google Scholar

28. Khair K, Bladen M, Holland M. Physical function and quality of life in adolescents with haemophilia TSOSFIT studyU. The Journal of Haemophilia Practice 2014;1T2U:11S10.17225/jhp.00018Search in Google Scholar

eISSN:
2055-3390
Language:
English
Publication timeframe:
Volume Open
Journal Subjects:
Medicine, Basic Medical Science, other, Clinical Medicine, Pharmacy, Pharmacology