The role of the European haemophilia nurse

1 Fischer, K, van der Bom JG, Molho P, et al. Prophylactic versus onSdemand treatment strategies for severe haemophilia: a comparison of costs and longSterm outcome. Haemophilia 2002; 8T6U: 745S52.10.1046/j.1365-2516.2002.00695.x12410642Open DOISearch in Google Scholar

2 Nilsson IM, Berntorp E, Löfqvist T, Pettersson H. TwentySfive years' experience of prophylactic treatment in severe haemophilia A and B. J Intern Med 1992; 232T1U: 25S32.10.1111/j.1365-2796.1992.tb00546.x1640190Search in Google Scholar

3 du Treil S, Rice J, Leissinger CA. Quantifying adherence to treatment and its relationship to quality of life in a wellScharacterized haemophilia population. Haemophilia 2007; 13T5U: 493S501.10.1111/j.1365-2516.2007.01526.x17880435Open DOISearch in Google Scholar

4 Fischer K, Bom JG, MauserSBunschoten EP, Roosendaal G, Berg HM. Effects of haemophilic arthropathy on healthSrelated quality of life and socioSeconomic parameters. Haemophilia 2005; 11T1U: 43S8.10.1111/j.1365-2516.2005.01065.x15660988Search in Google Scholar

5 Colvin BT, Astermark J, Fischer K, et al. European principles of haemophilia care. Haemophilia 2008; 14T2U: 361S74.10.1111/j.1365-2516.2007.01625.x18248408Open DOISearch in Google Scholar

6 Evatt BL. The natural evolution of haemophilia care: developing and sustaining comprehensive care globally. Haemophilia 2006; 12 Suppl 3: 13S21.10.1111/j.1365-2516.2006.01256.x16683992Open DOISearch in Google Scholar

7 Watkins H. An Overview of the Role of Nurses and Midwives in Health Leadership in Europe. NHS Institute for Innovation and Improvement and European Hospital and Healthcare Federation, London, 2010.Search in Google Scholar

8 Bedford M, Elliott D, Khair K, Mackett N. A competency framework for nurses caring for people with haemophilia and related bleeding disorders. Haemophilia Nurses Association, 2002.Search in Google Scholar

9 Khair K, Barker C, Bedford M, Elliot D, Harrington C, Lawrence K, Mackett N, Pollard D, on behalf of the UK Haemophilia Nurses’ Association. A Competency Framework for Haemophilia Nurses. J Haem Pract 2014; 1T1U: 32S34.10.17225/jhp.00010Search in Google Scholar

10 Kleinert D, Orto C, Gioia K, Hannan M. Von Willebrand disease: a nursing perspective. J Obstet Gynecol Neonatal Nurs 1997; 26T3U: 271S6.10.1111/j.1552-6909.1997.tb02142.x9170590Search in Google Scholar

11 Kuhathong K, Chuansumrit A, Keorochana S, et al. Nursing roles in orthopaedic joint correction in haemophiliac patients. Haemophilia 2000; 6T6U: 672S6.10.1046/j.1365-2516.2000.00426.x11122394Open DOISearch in Google Scholar

12 Schrijvers LH, BeijleveltSvan der Zande M, Peters M, Schuurmans MJ, Fischer K. Learning intravenous infusion in haemophilia: experience from the Netherlands. Haemophilia 2012; 18T4U: 516S20.10.1111/j.1365-2516.2012.02752.x22292416Open DOISearch in Google Scholar

13 Affara F. ICN Framework of Competencies for the Nurse Specialist. International Council of Nurses, Geneva, 2009.Search in Google Scholar