The Journal of Haemophilia Practice

Community Focus

Open Access | Mar 03, 2021

A descriptive study of United States bleeding disorders camps

Maria E. Santaella

Maria E. Santaella

, 

Cynthia Nichols

Cynthia Nichols

 and 

Michelle Witkop

Michelle Witkop

  

Open Access | Nov 07, 2021

“You’re only a carrier” – women and the language of haemophilia

Steve Chaplin

Steve Chaplin

 and 

Kate Khair

Kate Khair

  

Open Access | Mar 02, 2022

“It's a way of life”: Results from the Perceptions of Pain in Haemophilia study

Kate Khair

Kate Khair

, 

Jarek Kriukow

Jarek Kriukow

 and 

Mike Holland

Mike Holland

  

Case Study

Open Access | Mar 03, 2021

Case report of nasal pseudotumor – a rare presentation in severe haemophilia A with high titre inhibitors

Prakas Kumar Mandal

Prakas Kumar Mandal

, 

Malini Garg

Malini Garg

, 

Debasis Gantait

Debasis Gantait

 and 

Utpal Jana

Utpal Jana

  

Open Access | May 30, 2021

Dental extraction in congenital factor Vll deficiency with inhibitor – a case report

Geeta Nayar

Geeta Nayar

, 

Vijayakumar Narayana Pillai

Vijayakumar Narayana Pillai

, 

Sheena Mathew

Sheena Mathew

 and 

Gokul Das Menon

Gokul Das Menon

  

Open Access | Dec 22, 2021

Management of multiple myeloma in a patient with haemophilia with concurrent emicizumab – case report

Elizabeth Davies

Elizabeth Davies

, 

Luke Carter-Brzezinski

Luke Carter-Brzezinski

, 

Margarita Traintafillou

Margarita Traintafillou

, 

Rachel Brown

Rachel Brown

 and 

Charles R M Hay

Charles R M Hay

  

Clinical Research

Open Access | May 02, 2021

The patient gene therapy journey: Findings from qualitative interviews with trial participants at one UK haemophilia centre

Elsa Aradom

Elsa Aradom

 and 

Keith Gomez

Keith Gomez

  

Open Access | May 30, 2021

Red Flag Study: An observational cross-sectional survey looking at bleeding in patients with a bleeding disorder who are lost to follow-up

Doaa Abdelfattah

Doaa Abdelfattah

, 

Alicia E. Klaassen

Alicia E. Klaassen

, 

Heather Perkins

Heather Perkins

, 

Diane Bissonette

Diane Bissonette

, 

Dorine Belliveau

Dorine Belliveau

 and 

Robert J. Klaassen

Robert J. Klaassen

  

Open Access | May 30, 2021

The potential impact of gene therapy on health-related quality of life (HRQoL) domains in haemophilia

Monika Bullinger

Monika Bullinger

, 

Diandra Latibeaudiere Gardner

Diandra Latibeaudiere Gardner

, 

Hannah B Lewis

Hannah B Lewis

, 

Wolfgang Miesbach

Wolfgang Miesbach

, 

Sandra Nolte

Sandra Nolte

, 

Jamie O’Hara

Jamie O’Hara

, 

Brian O’Mahony

Brian O’Mahony

, 

Debra Pollard

Debra Pollard

, 

Mark Skinner

Mark Skinner

 and 

Jennifer Quinn

Jennifer Quinn

  

Open Access | Jul 13, 2021

Web-based Application for the Population Pharmacokinetic Service (WAPPS)'s impact on dosage selection: a single paediatric centre experience

Celia Kwan

Celia Kwan

, 

Mihir D. Bhatt

Mihir D. Bhatt

, 

Karen Strike

Karen Strike

, 

Kay Decker

Kay Decker

, 

Davide Matino

Davide Matino

 and 

Anthony K.C. Chan

Anthony K.C. Chan

  

Open Access | Oct 14, 2021

Bone mineral density in Canadian children with severe haemophilia A or B: a cross-sectional study

Cecily Bos

Cecily Bos

, 

Paul Tieu

Paul Tieu

, 

John K Wu

John K Wu

, 

Karen Strike

Karen Strike

 and 

Anthony KC Chan

Anthony KC Chan

  

Clinical Practice

Open Access | Jun 18, 2021

Personalising haemophilia management with shared decision making

Leonard A Valentino

Leonard A Valentino

, 

Victor Blanchette

Victor Blanchette

, 

Claude Negrier

Claude Negrier

, 

Brian O’Mahony

Brian O’Mahony

, 

Val Bias

Val Bias

, 

Thomas Sannié

Thomas Sannié

 and 

Mark W Skinner

Mark W Skinner

  

Open Access | Aug 18, 2021

The use of rIX-FP in patients with haemophilia B: a nurse's perspective

Kara Garner

Kara Garner

, 

Christine Guelcher

Christine Guelcher

 and 

Debra Pollard

Debra Pollard

  

Open Access | Oct 14, 2021

Telemedicine in haemophilia during COVID-19 and beyond: a comprehensive review

Casey L Li

Casey L Li

, 

Anthony KC Chan

Anthony KC Chan

, 

Davide Matino

Davide Matino

, 

Mihir D Bhatt

Mihir D Bhatt

, 

Kay Decker

Kay Decker

 and 

Karen Strike

Karen Strike

  

Open Access | Oct 14, 2021

Haemophilia specialist nurses’ perceptions of haemophilia B

Steve Chaplin

Steve Chaplin

, 

Maj Friberg Birkedal

Maj Friberg Birkedal

, 

Erica Crilly

Erica Crilly

, 

Simon Fletcher

Simon Fletcher

, 

Sara Garcia

Sara Garcia

, 

Greta Mulders

Greta Mulders

, 

Linda Myrin-Westesson

Linda Myrin-Westesson

, 

Debra Pollard

Debra Pollard

, 

Anna Sanigorska

Anna Sanigorska

 and 

Nanda Uitslager

Nanda Uitslager

  

Open Access | Mar 02, 2022

Haemophilia A management with emicizumab: A survey of haematologists in the United States

Anisha M. Patel

Anisha M. Patel

, 

Wendy E. Owens

Wendy E. Owens

, 

Kathleen Poulos

Kathleen Poulos

, 

Karina Raimundo

Karina Raimundo

, 

Gabriel Wong

Gabriel Wong

, 

Janet Bernard

Janet Bernard

, 

Janet Powers

Janet Powers

 and 

Richard H. Ko

Richard H. Ko

  

Open Access | Mar 02, 2022

Bone health assessment in haemophilic arthropathy: A single centre study from Kolkata, West Bengal, India

Prakas Kumar Mandal

Prakas Kumar Mandal

, 

Malini Garg

Malini Garg

, 

Prantar Chakrabarti

Prantar Chakrabarti

, 

Amrita Bhowmik

Amrita Bhowmik

, 

Debasis Gantait

Debasis Gantait

 and 

Tuphan Kanti Dolai

Tuphan Kanti Dolai

  

Commentary

Open Access | Nov 07, 2021

The B-team: Equal but different?

Luke Pembroke

Luke Pembroke

  

Open Access | Dec 30, 2021

Seeing the bigger picture: Qualitative research in the Zoom^® age

Simon Fletcher

Simon Fletcher