Haemophilia nursing practice: A global survey of roles and responsibilities

Open access


Haemophilia nursing roles continue to develop alongside nursing as a profession. There are now nurses who practice autonomously, much like a medical practitioner, and many who have extended their roles to deliver direct patient care, education and research. There has been little, if any, comparison with haemophilia nurse roles internationally, nor of the impact of these roles on patient reported outcomes. This paper reports the results of an international survey, of 297 haemophilia nurses from 22 countries, describing current day practice and care. Many nurses work above and beyond their funded hours to improve care through research and evidence-based practice. While some are able to attend international meetings to report and discover this evidence, many due to financial constraints, are not. Others reported difficulty with communicating in English, which limited congress attendance. With on-line learning capability, sharing of best practice is now possible, and this approach should be a platform developed in coming years to further enhance haemophilia nursing practice and ultimately patient care.

1. Colvin BT, Astermark J, Fischer K, Gringeri A, Lassila R, Schramm W, Thomas A, Ingerslev J; Inter Disciplinary Working Group. European principles of haemophilia care. Haemophilia 2008;14:361-74. doi:

2. Khair K, Holland M, Vidler V, Loran C, Harrington C. Why don’t haemophilia nurses do research? Haemophilia 2012:18;540-543. doi:

3. McDonnell A, Goodwin E, Kennedy F, Hawley K, Gerrish K, Smith C. An evaluation of the implementation of Advanced Nurse Practitioner (ANP) roles in an acute hospital setting. J Adv Nurs 2011;67:2004-14

4. Gregorowski A, Brennan E, Chapman S, Gibson F, Khair K, May L, Lindsay-Waters A. An action research study to explore the nature of the nurse consultant role in the care of children and young people. J Clin Nurse 2013;1-2:201-10. doi:

5. Forrester C, Bielby H, Johns S, Efford J, Holland M, Khair K; United Kingdom Haemophilia Nurse’s Association. Potential for development of haemophilia link nurse role within UK hospitals. Haemophilia 2013;19:578-82. doi:

6. O’Shea E, Coughlan M, Corrigan H, McKee G. Evaluation of a nurse-led haemophilia counselling service. Br J Nurs 2012;14:868-70.

7. Aiken L, Clarke S, Cheung R, Sloane D, Silber J. Educational levels of hospital nurses and surgical patient mortality. J Am Medic Assoc 2003;290:1617-1623.

8. Partners in Bleeding Disorder Education available at www.partnersprn.org Last accessed 3 June 2016.

9. American Nurses Credentialing Center (ANCC) http://nursecredentialing.org/HemostasisNursing (accessed June 14, 2016).

10. Khair K, Barker C, Bedford M, Elliott D, Harrington C, Lawrence K, Mackett N, Pollard D. A core competency framework for haemophilia nurses in the UK. J Haem Pract 2013; 1(1):J Haem Pract 2014; 1(1): 32-36. doi:

11. Harrington C, Bedford M, Andritschke K, Barrie A, Elfvinge P, Gronhaug S, Mueller-Kagi E, Leenders B, Schrijvers LH. A European curriculum for nurses working in haemophilia. Haemophilia 2016;1:103-9. doi:

Journal Information


All Time Past Year Past 30 Days
Abstract Views 0 0 0
Full Text Views 71 71 15
PDF Downloads 53 53 13