Biobanks and Public Health: A New Challenge for Public Engagement and Trust

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Modem biobanks should be considered as important structural platforms for sharing samples and data, providing benefits that go beyond those of a single study. To increase the impact of biobanking on feasible strategies to protect and improve peoples’ health, it could be useful to increase awareness about biobank research potential in the scientific community, as well as to promote collaboration among different fields of expertise. The basis for involvement of biobanks in public health has already been partly built up, emphasising the synergy in organising efforts and the openness to infrastructure collaboration, to ensure reliable long-term funding and resource sharing to the benefit of all. To obtain the maximum benefits possible from biobanks, which currently constitute a set of heterogeneous structures, a strategy of coordinated governance is needed, based on harmonisation of different aspects, built on the consensus of all stakeholders involved and society in general. It is important that researchers strive to understand public attitudes in this biobanking involvement so that the relationships between public trust in biobanking, donors’ behaviours and support for public-health involvement in the health-care system can be better understood.

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  • 1. Watson PH Wilson-McManus JE Barnes RO Giesz SC Png A Hegele RG et al. Evolutionary concepts in biobanking - the BC BioLibrary. J Transl Med. 2009; 7:95.

  • 2. Harris JR Burton P Knoppers BM Lindpaintner K Bledsoe M Brookes AJ et al. Toward a roadmap in global biobanking for health. Eur J Hum Genet. 2012;20( 11): 1105-11.

  • 3. Bravo E Napolitano M Santoro F Belardelli F Federic A. The Ital ian 1 lub of Population Biobanks as a potential tool for improving public health stewardship. Biopreserv Biobank. 2013;11(3): 173-5.

  • 4. Budimir D Polasek O Marusic A Kolcic I Zemunik T Boraska V et al. Ethical aspects of human biobanks: a systematic review. Croat Med J. 2011 ;52(3):262-79.

  • 5. Kass NE. An ethics framework for public health. Am J Public Health. 2001 ;91(11): 1776-82.

  • 6. O’Doherty KC Hawkins AK Buigess MM. Involving citizens in the ethics of biobank research: informing institutional policy through structured public deliberation. Soc Sci Med. 2012;75(9): 1604-11.

  • 7. Nicol D Critchley C. Benefit sharing and biobanking in Australia. Public Underst Sci. 2012;21(5):534-55.

  • 8. Caenazzo L Tozzo P Pegoraro R. Biobanking research on oncological residual material: a framework between the rights of the individual and the interest of society. BMC Med Ethics. 2013; 14:17.

  • 9. Hoedemaekers R Gordijn B Pijnenbuig M. Does an appeal to the common good justify individual sacrifices for genomic research? Theor Med Bioeth. 2006;27(5):415-31.

  • 10. Hoedemaekers R Gordijn B Pijnenburg M. Solidarity and justice as guiding principles in genomic research. Bioethics. 2007;21(6):342-50.

  • 11. Morrell B Lipworth W Axler R Kerridgel Little M. Cancer as rubbish: donation of tumor tissue for research. Qual 1 lealth Res. 2011 ;21( 1 ):75-84.

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