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The Results of a Three Year Analysis on Sarcoidosis Patients Registered in the Regis Electronic Registry

References 1. Gliklich RE, Dreyer NA, Leavy MB. Rare Disease Registries [Internet]. Agency for Healthcare Research and Quality (US); 2014 [cited 2018 Mar 26]. Available from: https://www.ncbi.nlm.nih.gov/books/NBK208609/ 2. Michael A. Nead, David G. Morris. Interstitial and Inflammatory Lung Diseases. In: Fishman's Pumonary Disease and Disorders Authors Alfred P Fishman, Jack A Elias, Robert M Senior, Jay A Fishman, Allan I Pack, Michael A Grippi. 2008. p. 11057, 1112. 3. Raghu G, Nyberg F, Morgan G. The epidemiology of interstitial lung

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Role of the cancer registries in determining cancer mortality in Asia

-2001. Annual Report . Barshi, India; 2005. Sankarnarayan R, Black RJ, Parkin DM. Cancer survival in developing countries . IARC Scientific Publication No.145. Lyon, France: IARC. 1998. Pakitil AT, Khan BA, Petersen L, Abraham LS, Greendale GA, Ganj PA. Making effective use of tumour registries in cancer survivorship. Cancer 2001; 92 : 1305-14.

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Hemofiltration Romanian Registry – Typologies of patients identified by cluster analysis

Research: An Introduction, Historical Perspective, and Future Directions, in West J Nurs Res. 2018 Nov; 40(11): 1658–1676. 4. S. P. Luh, C. H. Chiang. Acute lung injury/acute respiratory distress syndrome (ALI/ARDS): the mechanism, present strategies and future perspectives of therapies, in J Zhejiang Univ Sci B. 2007 Jan; 8(1): 60–69. 5. C. V. Vernic, P. T. Tamas, O. Bedreag, A. F. Rogobete, C. L. Neamțu, C. M. Gîndac, D. M. Dragulescu, S. A. Apostol, D. Sandesc. Romanian electronic registries for patients with extracorporeal support of vital functions, in

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Selected data from the Polish National Prenatal Cardiac Pathology Registry from the year 2016

References 1. Kordjalik P, Radzymińska-Chruściel B, Słodki M, Włoch A, Szymkiewicz-Dangel J, Respondek-Liberska M, Tobota Z: The Polish National Registry for Fetal Cardiac Pathology (www.orpkp.pl) - selected data analysis for 2013 and 2014 and comparison with data from 2004 to 2012. Prenat Cardio. 2015: 5: 6-12. 2. Słodki M, Szymkiewicz-Dangel J, Włoch A, Radzymińska - Chruściel B, Siwińska A, Respondek-Liberska M: Selected data from Polish National Registry of Fetal Cardiac Pathology for the year 2012. Quo vadis? Prenat Cardio

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Romanian Registry of Hypertrophic Cardiomyopathy – overview of general characteristics and therapeutic choices at a national level

., KONTÉ M., LAROCHE C., et al. European Cardiomyopathy Pilot Registry: EURObservational Research Programme of the European Society of Cardiology . 2016; 37 (2):164-73. 5. CHARRON P., ELLIOTT PM., GIMENO JR., CAFORIO ALP., KASKI JP., TAVAZZI L., et al. The Cardiomyopathy Registry of the EURObservational Research Programme of the European Society of Cardiology: baseline data and contemporary management of adult patients with cardiomyopathies . Eur Heart J. 2018 (doi: 10.1093/eurheartj/ehx819). 6. OLIVOTTO I., MARON MS., ADABAG AS., CASEY SA., VARGIU D

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Inquiry and computer program Onko-Online: 25 years of clinical registry for breast cancer at the University Medical Centre Maribor

Introduction In Slovenia, we have one of the oldest population-based cancer registries in Europe named the Cancer Registry of Republic of Slovenia. It was founded at the Institute of Oncology in Ljubljana in 1950. This registry monitors the population burden for all malignant and non-malignant oncological diseases. 1 Clinical registers in Slovenia are needed for collecting additional information on certain cancers. 2 The Clinical Register of Skin Melanoma was founded in 2017 as the first special clinical registry for Slovenia. 3 At our Department of

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Selected Data from the Polish National Registry for Fetal Cardiac Pathology for the Year 2012 – Quo Vadis?

References 1. Respondek-Liberska M: Ogólnopolski Rejestr Problemów Kardiologicznych Płodów omówienie danych z roku 2011.Prenat Cardio. 2012:2(1);28-28 2. Respondek-Liberska M, Szymkiewicz-Dangel J, Tobota Z, Słodki M: Założenia i wstępne wnioski Ogólnopolskiego Rejestru Patologii Kardiologicznych Płodów (www.orpkp.pl). Pol. Przegl. Kardiol., 2008, 10, 2, 129-135 3. Słodki M, Szymkiewicz-Dangel J, Tobota Z, Seligman NS, Weiner S, Respondek-Liberska M: The Polish National Registry for Fetal Cardiac Pathology

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The Polish National Registry for Fetal Cardiac Pathology (www.Orpkp.Pl) – Selected Data Analysis for 2013 and 2014 and Comparison wth Data from 2004 to 2012

References 1. Słodki M, Szymkiewicz-Dangel J, Włoch A, Radzyminska-Chrusciel B, Siwinska A, Respondek-Liberska M.: Selected data from Polish National Registry of Fetal Cardiac Pathology for the year 2012. Quo vadis?. Prenat Cardio 2013, 3(1): 5-9. 2. Respondek-Liberska M.: Polish National Registry for Fetal Cardiac Pathology - dat from year 2011. Prenat Cardio. 2012, 2(1): 24-28 3. Respondek-Liberska M, Szymkiewicz-Dangel J, Tobota Z, Słodki M.: The goal and preliminary conclusions from the Polish National

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HLHS on the basis of a Nationwide Registry of Fetal Cardiac Pathology www.orpkp.pl

A. oraz Członkowie Regionalnych Zespołów ds. PRWWR: Polski rejestr wrodzonych wad rozwojowych: ocena dwuletniej działalności, Ped. Pol. 1999;6,supl.:260. 7. Respondek-Liberska M.: Kardiologia prenatalna dla położników i kardiologów prenatalnych, Lublin 2006. 8. Respondek-Liberska M., Szymkiewicz-Dangel J., Tobota Z., Słodki M.: Purpose and preliminary conclusions from The National Registry of Fetal Cardiac Pathology in Poland (www.orpkp.pl). Polski Przegląd Kardiologiczny 2008;10,2:129-135. 9. Respondek-Liberska M

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The Creation Of The National Registry Of Rare Diseases In The Slovak Republic

References [1] Aymé S. and Rodwell Ch. The European Union Committee of Experts on Rare Diseases: Three Productive Years at the Service of the Rare Disease Community. Orphanet Journal of Rare Diseases 2014 9:30 [2] Gliklich RE, Dreyer NA, et al. Registries for Evaluating Patient Outcomes: A User’s Guide. 2nd ed. (AHRQ, September 2010)). [3] Registries under NCHI. [online] Bratislava, National Centre of Health Information [last access verified 20/2/2013]. Accessible at: http

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