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What is a nurse-led service? A discussion paper

References 1. Berntorp E, Hart D, Mancuso ME, d'Oiron R, Perry D, O'Mahony B, Kaczmarek R, Crato M, Pasi J, Miners A, Carlsson KS, Kitchen S, Boehlen F, Giangrande P, Cebura E, Uitslager N, Osooli M, Janeckova D, Haldon R, Rivolta GF. The first Team Haemophilia Education meeting, 2015, Amsterdam, The Netherlands. Eur J Haematol 2016;97 Suppl 83:3-18. doi: 10.1111/ejh.12760 2. Bradway C, Trotta R, Bixby MB et al. A qualitative analysis of an advanced practice nurse-directed transitional care model intervention. Gerontologist

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The road to cloning of factor VIII and the recombinant era

References 1. Zimmerman TS, Ratnoff OD, Powell AE. Immunologic differentiation of classic hemophilia (factor 8 deficiency) and von Willebrand’s disease, with observations on combined deficiencies of antihemophilic factor and proaccelerin (factor V) and on an acquired circulating anticoagulant against antihemophilic factor. J Clin Invest 1971; 50(1): 244-54. 2. Owen WG, Wagner RH. Thromb Diath Haemorrh 1972; 27(3): 502-15. 3. Vehar GA, Keyt B, Eaton D, et al. Structure of human factor VIII. Nature 1984; 312

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Progressive arthropathy in the course of immune tolerance induction failure in a child with hemophilia A and FVIII inhibitor – a case report

children with severe haemophilia A: a protocol from the UK Haemophilia Centre Doctors’ Organisation Inhibitor and Paediatric Working Parties. Haemophilia 2017;23:654–59. 28574205 10.1111/hae.13264 Collins P Chalmers E Alamelu J et al First-line immune tolerance induction for children with severe haemophilia A: a protocol from the UK Haemophilia Centre Doctors’ Organisation Inhibitor and Paediatric Working Parties Haemophilia 2017 23 654 59 [2] Ananyeva NM, Lacroix-Esmazes S, Hauser CA. Inhibitors in hemophilia A: mechanisms of inhibitor

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Neonatal circumcision in patients with haemophilia is safe – a single centre experience

References 1. Weiss HA, Larke N, Halperin D, Schenker I. Complications of circumcision in male neonates, infants and children: a systematic review. BMC Urology; 2010: 10:2. doi: 10.1186/1471-2490-10-2. 2. Niku SD, Stock JA, Kaplan GW. Neonatal circumcision. Urol Clin N Am 1995; 22: 57 65. 3. Kearney S, Sharathkumar A, Rodriguez V, et al. Neonatal circumcision in severe haemophilia: a survey of paediatric haematologists at United States Hemophilia Treatment Centers. Haemophilia 2015; 21: 52-7. 4

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You think you know the patient inside-out. But do you know the outside-in?

with haemophilia: more than just carriers. J Haem Pract 2014; 1(2): 2-7. doi: 10.17225/jhp.00016. 7. Khair K, Meerabeau L, Gibson F. Self-management and skills acquisition in boys with haemophilia. Health Expect 2015; 18(5): 1105-13. 8. Schrijvers LH, Schuurmans MJ, Fischer K. Promoting selfmanagement and adherence during prophylaxis: evidencebased recommendations for haemophilia professionals. Haemophilia 2016; 22(4): 499-506. 9. Marshall B. Fashion statement: hemophilia-inspired clothing line garners national

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Global clotting assays - monitoring the effect of by-passing agents in haemophilia patients with inhibitors

. Mancuso ME, Fasulo MR. Thrombin Generation Assay as a Laboratory Monitoring Tool during Bypassing Therapy in Patients with Hemophilia and Inhibitors. Semin Thromb Haemost. 2016;42:30-5. 7. Mancuso ME, Chantaragkul V, Clerici M. Low thrombin generation during major orthopedic surgery fails to predict bleeding risk in inhibitor patients treated with bypassing agents. Haemophilia. 2016;22(4):292-30. DOI: 10.1111/hae.12939 8. Turecek PL, Varadi K, Keil B, Negrier C, Berntorp E, Astermark J, et al. Factor VIII inhibitor-bypassing agents act by

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Patient and caregiver perceptions of a pre-filled diluent syringe (MixPro®)

References 1. Srivastava A, Brewer AK, Mauser-Bunschoten EP, et al, Guidelines for the management of hemophilia. Haemophilia 2013 19(1): e1-e47. 2. Chambost H, Ljung R, and the Pednet Group. Changing pattern of care of boys with haemophilia in western European centres. Haemophilia 2005 11(2): 92-9. 3. Ljung R, Prophylactic therapy in haemophilia. Blood Rev 2009 23(6): 267-74. 4. Vidovic N, Musso R, Klamroth R, et al. Postmarketing surveillance study of Kogenate Bayer with Bio-Set in patients

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Use of arteriovenous fistula in children with bleeding disorders

References 1. Löfqvist T, Nilsson IM, Berntorp E, Pettersson H. Haemophilia prophylaxis in young patients: a long-term follow-up. J Intern Med 1997; 24: 395-40. 2. Fischer K, Collins PW, Ozelo MC, Srivastsva A, Young G, Blanchette VS. When and how to start prophylaxis in boys with severe hemophilia without inhibitors: communication from the SSC of the ISTH. J Thromb Haemost 2016; 14: 1105-9. 3. Komvilaisak P, Connolly B, Naqvi A, Blanchette V. Overview of the use of implantable venous access devices in the

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Hepatitis C and bleeding disorders in Europe

References 1. Makris M, Konkle BA. Hepatitis C in haemophilia: time for treatment for all. Haemophilia 2017; 23(2): 180-1. doi: 10.1111/hae.13183. 2. Evatt BL. The tragic history of AIDS in the hemophilia population. 1982-1984. J Thromb Haemost 2006; 4(11): 2295-301. doi 10.1111/j.1538-7836.2006.02213.x. 3. O’Mahony B, Noone D, Giangrande PLF, Prihodova L. Haemophilia care in Europe - a survey of 35 countries. Haemophilia 2013; 19(4): e239-47. doi: 10.1111/hae.12125. 4. World Federation of

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Transforming Transition: enhancing practice in haemophilia

://www.nice.org.uk/guidance/ng43 (accessed 19 October 2018). 3. NHS England. 2013/14 NHS standard contract for haemophilia (all ages). B05/S/a. NHS Commissioning Board, 2013. Available at https://www.england.nhs.uk/wp-content/uploads/2013/06/ b05-haemophilia.pdf (accessed 19 October 2018). 4. Chaplin S. Transition from paediatric to adult services in haemophilia. J Haem Pract 2015; 2(2) : 1-2. doi: 10.17225/ jhp00059 5. Waldboth V, Patch C, Mahrer-Imhof R, Metcalfe A. Living a normal life in an extraordinary way: A systematic review investigating

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