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Jenny Bryan

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Brian O’Mahony, Chief Executive of the Irish Haemophilia Society and President of the European Haemophilia Consortium, tells Jenny Bryan about the special role that nurses play within the haemophilia community

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Jenny Bryan

Abstract

Haemophilia nursing is a relatively young specialty. For early nurses like Maureen Fearns there was no roadmap. She recalls the birth and early tribulations of the HNA

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Sandra Dodgson, Jenny Bryan, Simon Fletcher, Cathy Harrison, Clare Ibbs, April Jones, Paul McLaughlin, Gráinne O’Brien, Sharon Varney, Anne Wareing and Pamela Wick

Abstract

Members of the multi-disciplinary team involved in delivering haemophilia care face a range of significant clinical and service leadership challenges. These include the developing treatment landscape, the drive towards individualised care, an uneven age structure among haemophilia nurses and constrained budgets. Faced with such challenges, the ASPIRE programme has been established to encourage and support a new generation of haemophilia leaders who are committed to improving haemophilia care across the UK, and beyond. The programme is open to healthcare professional from multiple disciplines, and is designed to support the development of a leadership community comprising members of the haemophilia care team in a way that contrasts with hierarchical leadership and management courses more typically found in the NHS.